Andy
Retired committee member
Myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS) is a highly debilitating disorder characterised by multiple symptoms including profound fatigue, muscle and joint pain, gut disorder and cognitive impairment. These symptoms are often triggered or worsened following physical or mental exertion.
The aetiology or underlying mechanism of the illness has not been defined, and its diagnosis remains a challenge in the absence of a biological or clinical test. Diagnosis currently relies on differentiating between other diseases and disorders, as well as self-reported symptom-based criteria. Increasing community interest in Australia focuses on improving our understanding and treatment of ME/CFS.
ME/CFS Advisory Committee
NHMRC has established an ME/CFS Advisory Committee (the Committee) under section 39 of the National Health and Medical Research Council Act 1992. The Committee will consider and advise the NHMRC Chief Executive Officer on current needs for research on ME/CFS and clinical guidance on its diagnosis and treatment.
Terms of Reference
The Committee will advise the Chief Executive Officer of NHMRC on the:
- status of national and international research into ME/CFS
- gaps in research on ME/CFS. This will include but not be limited to research on the immunology, psychology, microbiology and virology of the conditions, as well as any health services research
- status of clinical guidance on ME/CFS available to doctors and health professionals
- requirements and opportunities for improved clinical guidance
- any other issue on ME/CFS that the NHMRC Chief Executive Officer may request.
https://www.nhmrc.gov.au/health-topics/myalgic-encephalomyelitis-and-chronic-fatigue-syndrome