from their website Site Map - BACME Primary Fatigue Service (for ME/CFS and Long COVID) South Yorkshire and North Derbyshire ME/CFS Service ME/CFS and Fibromyalgia Service, Royal London Hospital for Integrated Medicine Torbay and South Devon Children and Young People ME/CFS Service Bath Centre for Fatigue Services UK: NHS RUH - Bath Centre for Fatigue | Science for ME Fatigue Service, Royal Free London NHS Foundation Trust United Kingdom: London - Royal Free Hospital CFS services | Science for ME TRACCS, University College Hospital Vitality360 United Kingdom: Vitality360, a private company treating ME, fatigue and pain | Science for ME ME/CFS Service, Homerton Healthcare NHS Trust Persistent Physical Symptoms Research and Treatment Unit Bristol CFS/ME Service https://www.s4me.info/threads/bristol-chronic-fatigue-syndrome-me-service-bristol-m-e-service-peter-gladwell.22648/ https://www.s4me.info/threads/united-kingdom-north-bristol-nhs-trust-me-cfs-clinic.14440/ The Paediatric Specialist Fatigue Service, Royal United Hospital, Bath https://www.s4me.info/threads/united-kingdom-bath-paediatric-cfs-fatigue-clinic-esther-crawley-phil-hammond.22061/ Somerset CFS/ME Service North, Mid, East Devon and Exeter ME/CFS Service https://www.s4me.info/threads/nhs-royal-devon-university-healthcare-me-cfs-service.31883/ Torbay and South Devon ME/CFS Service Dorset Children and Young People’s Chronic Fatigue Service Dorset CFS/ME Services South Coast Fatigue Portsmouth Chronic Fatigue Syndrome Service Sussex Paediatric CFS/ME Service Sussex-wide CFS/ME service Kent & Medway CFS/ME Service South West London and Surrey CFS/ME Service Hillingdon CFS/ME Service West Berkshire ME/CFS service Oxfordshire CFS/ME Service Buckinghamshire Chronic Pain and Fatigue Management Services Bedfordshire Chronic Fatigue Service National CFS Diagnostic and Specialist Rehabilitation Service, Essex Neurosciences Essex Chronic Fatigue Service East and North Herts Chronic Fatigue/ME service for young people Cambridge and Peterborough CFS/ME service for Children and Young People Norfolk and Suffolk ME/CFS Service https://www.s4me.info/threads/united-kingdom-norfolk-and-norwich-university-hospitals-nhs.28340/ Herefordshire and Worcestershire ME/CFS Service Birmingham Chronic Fatigue Service https://www.s4me.info/threads/united-kingdom-nhs-birmingham-and-solihull-me-cfs.23829/ Liverpool Children’s CFS/ME service Liverpool CFS/ME Management Services Leicester CFS Service Staffordshire Chronic Fatigue Syndrome Service Derbyshire Chronic Fatigue Syndrome (CFS)/ME Service (Adults) PICS Community ME/CFS Fatigue management service Nottingham Childrens Hospital CFS/ME Service for Children and Young Adults https://www.s4me.info/threads/united-kingdom-nottingham-me-cfs-service.26446/ Nottingham CityCare MOSAIC Service Lincolnshire CFS/ME Service South Yorkshire/North Derbyshire Children and Young People’s Specialist CFS/ME Service Manchester CFS/ME Service for Children and Young People Salford CFS/ME Service United Kingdom: Salford CFS Service, Northern Care Alliance CFS/ME Service (Ashton, Leigh and Wigan) BCUHB ME/CFS Service, Bryn Y Neuadd, Llanfairfechan (West) North West Fatigue Clinic Central Lancashire Moving Well ME/CFS Service National Inpatient Centre for Psychological Medicine (NICPM) United Kingdom: National Inpatient Centre for Psychological Medicine (NICPM) Leeds and West Yorkshire ME/CFS Service https://www.s4me.info/threads/united-kingdom-leeds-and-york-partnership-cfs-centre.13916/ Yorkshire Fatigue ME/CFS Service South Tees CFS/ME Service United Kingdom: South Tees CFS Service South of Tyne and Wear Children's and Young People's Chronic Fatigue Syndrome Service South of Tyne CFS Service United Kingdom: South Tyneside and Sunderland - South of Tyne CFS service North of Tyne CFS/ME Service Manx Care ME/CFS and Long COVID Service United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM) Cornwall and Isles of Scilly CFS/ME Service United Kingdom: Cornwall ME/CFS services Lothian ME/CFS Service United Kingdom: Scotland NHS Lothian ME/CFS clinic the blue links go to dedicated pages with info on the BACME website. the green ones go to threads on this forum.
We are a bit constrained with moderation staff right now, but if someone can find the relevant threads and send me them in a conversation message, I'll add the links. Edit - adding some
That's a lot of services that produce absolutely zero difference in outcome compared with health care systems that have no such thing. Such as here in Quebec, where we have no such services. It's just as bad here as it's in the UK. In fact, it's pretty much identical, in a 0=0 kind of way. Truly an impressive level of mediocrity. Because that's a lot of services. And it makes zero difference. Which no one involved in the services seem to mind, so you actually have two problems.
Yes. Also, the UK patient charities could be loudly and bluntly be saying, "look at the waste of money. These services are achieving nothing, in fact they are probably achieving net harm." But they don't, presumably believing that the services might magically become useful one day. In fact, some even cosy up to them e.g. the association with Gladwell, and do their work for them e.g. paying for the development of flawed tools that will be used to show how useful the clinics are.
It would be interesting to know what the “offer” of each service is. I know what it is for the Royal Free in Hampstead but I don’t think they’re listed. Basically - 12 week course held online, 2 hours session each week (!) 1 hour group discussions on pacing with a psych, 1 hour group physiotherapy with a physio. so we can say yes, there are clinics but they will see mild/moderate for 3 months then discharge back to GP.
Also the “national centre” at Queens Hospital Romford info on BACME is out of date; it ceased accepting referrals in 2021 https://meassociation.org.uk/2021/1...ist-service-at-queens-hospital-romford-essex/ Maybe BACME’s first step can be updating their website and records…!
