BBC Article: discussing brainfog

I don't think they have the RCTs to prove that sleeping, drinking water, activity, food and reduction of stress* is going to resolve the brain damage that Covid is causing, infact I know they don't. This is an entire a list of unevidenced patient blame.
 
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One day medicine will understand this junk is just as damaging as whatever people like RFK Jr are doing. One failure led to the other.

Might take a while, they're about the slowest learners I've ever seen. And some of the fastest, too. Odd bunch.
BrightCandle said:
I don't think they have the RCTs to prove that sleeping, drinking water, activity, food and reduction of stress* is going to resolve the brain damage that Covid is causing, infact I know they don't. This is an entire a list of unevidenced patient blame.
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Bah. Who needs evidence? This is evidence-based medicine! Literally a replacement system for evidence. You fling your arrow and paint your target as needed.
 
rvallee said:
One day medicine will understand this junk is just as damaging as whatever people like RFK Jr are doing. One failure led to the other.

Might take a while, they're about the slowest learners I've ever seen. And some of the fastest, too. Odd bunch.

Bah. Who needs evidence? This is evidence-based medicine! Literally a replacement system for evidence. You fling your arrow and paint your target as needed.
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Planck's principle - "A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it"

Professors will at some point start teaching med students better and then slowly but surely over many decades these out of date unevidenced views will just die out. I see no evidence in my lifetime that medicine is capable of learning faster than that.
 
Kiristar said:
No mention of ME but of LC and menopause and Lupus.
Struggling to articulate how this made me feel.
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Indeed. I have little sympathy for those doing this by this many years in, noone is that callously stupid to choose not to realise how inappropriate it is for them to label their own ennui or feeling like they need a better coffee in the morning with the already insulting bucket-label that medics have insisted on using instead of cognitive exhaustion and anomia and all the specifics that come with these proper illnesses.

It is as inappropriate a deliberate hand in propaganda as if the BBC decided it was OK to write an article using the term 'diabetic coma and how to deal with it' and to go on to describe the post-lunch-slump most get but some don't really notice unless they pay close attention because they aren't busy, but some 'could really do with top tips on'. SO that everyone who powered-through that way can forget that diabetics actually need proper medical care, but see the symptoms those struggling to get said care right suffer from as 'just like when they are tired after lunch'.

Or 'sleep apnoia and how to cope' then went on to give out advice about sleep hygiene and having a coffee before you get behind the wheel of an articulated lorry. SO that all readers start to think those suffering from sleep apnoea could learn a bit from them as they have done so well at staying awake despite sometimes not getting the best night's sleep.

Or writing propaganda on how people's sore legs and not being able to walk quite straight for a bit after an army boot camp session are now to be referred to with the same term as the spasms and disability someone with MS. So forget funding that medical treatment and care because they too - just like all with 'tired leg fog' can 'walk it off in a few hours of gentle stretches'.


Either the BBC has to stop using that term for things that aren't ME/CFS or other serious forms of cognitive issues. Or it has to stop copying propagandists wanting to use that term 'brain fog' for ME/CFS and other serious forms of cognitive issues caused by exhaustion. It isn't stupid, and it isn't confused, and it is able to implement basic respect for all of the above I assume. And saying BACME/NHS pointed them to 'fatigue guidelines' instead of ME/CFS doesn't make them not responsible for checking that is true ie being a journalist.

So it knows exactly what it is doing when it is talking about a serious disability associated with an illness and does an article with that same term making it sound as if it is 'the same as' the fuggy head you get after a cold or a busy xmas period of celebrating.
 
Utsikt said:
The NHS page they link to in the article is so bad.

Management strategies are presented as treatments, and there’s a heap of unevidenced advice at the bottom that essentially puts all the blame on the patient for living incorrectly.
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Indeed, which takes things into propaganda territory when the term is to be used for 'even when behaving perfectly this occurs' is what the term is used for and yet someone is trying to sell the symptom as if it is an indicator of not looking after oneself/burning the candle at both ends.

It is like talking about diabetes and then switching into talking about healthy people who feel a bit funny because they ate 25 chocolate bars that day, and how they tend to improve if they aren't doing such things and behave themselves. And pretending with a straight face that there was no non-sequitur inferring something about diabetics isn't it?

Except of course it is worse because the NHS website people don't seem to get that ME/CFS isn't 'feeling tired in your mind' really underneath it all it feels like when you read their stuff and they use the concept of 'fatigue' which is the 'thinking you feel tired, even though you actually feel better once you've got out and had a walk with some fresh air on your face' rather than face-planting into bed unable to move to feed yourself from having pushed through a very different definition of 'fatigue' on an ongoing basis for too many days based only on having to do the impossible or lose the roof over said bed.

Even on a well-person's scale they don't even get that this is closer in exhaustion to when they caught flu after glastonbury where they only had a tent for 4 days in the rain and didn't sleep or rest, or couldn't string words together to even reply what they want for dinner to their wife after a peak 10 days straight at work where they were on phones and a spreadsheet solidly for 16hr days, and not the 'fatigue' they get when they are bored of their job and it is winter so is getting dark early and they haven't been doing their usual gym routine/healthy diet as much
 
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bobbler said:
It is like talking about diabetes and then switching into talking about healthy people who feel a bit funny because they ate 25 chocolate bars that day, and how they tend to improve if they aren't doing such things and behave themselves. And pretending with a straight face that there was no non-sequitur inferring something about diabetics isn't it?
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I recently got told off by an HCP because I said that you wouldn’t ask someone with diabetes to gradually eat more sugar, so why are you asking someone with an exertion intolerance to gradually do more?

Apparently, due to the magic of allostasis, the body will get used to the new level if you give it time..
 
Utsikt said:
I recently got told off by an HCP because I said that you wouldn’t ask someone with diabetes to gradually eat more sugar, so why are you asking someone with an exertion intolerance to gradually do more?

Apparently, due to the magic of allostasis, the body will get used to the new level if you give it time..
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Stealing this. Might get it tattooed. Or email it to Paul Garner.
 
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