BBC Newsbeat: M.E. And Me - documentary available from Tuesday 8th May, 6am

I don't think there is an existing thread for this yet? There are various posts about it in other threads but thought it might be useful to have its own thread.

http://www.bbc.co.uk/mediacentre/proginfo/2018/19/me-and-me

Now available to view at https://www.bbc.co.uk/iplayer/episode/p065b4lp/newsbeat-documentaries-me-and-me
Probably only available to view by UK residents at the moment.

ETA: Add link to program.

 

Presenter says she got better through yoga, diet, and a positive attitude, but despite the potential pitfalls of such a statement this looks like it could be very good.

 

Hmm, OK, well hopefully she will accept that there are lots of people who do exactly the same and don't recover. And even if she doesn't, hopefully the other influences in the program will present a more realistic view.

 

This sounds like the typical modest improvement from initial onset, which usually happens regardless of what the patient does. It sounds like Emma is still ill, unfortunately

 

I was careful to phrase my initial comment but perhaps not careful enough - I am really happy that this has been done and all the levels of participation from various groups (Biobank, severely ill patients) gives me encouragement that this will be very good!

 

The Liverpool Echo is giving the documentary a mention

https://www.liverpoolecho.co.uk/news/liverpool-news/bootle-mum-who-can-only-14622794


They originally covered her story on mother's day (along with the Daily Mirror)
Mentioned in this thread here:

https://www.s4me.info/threads/daily...-her-son-a-few-minutes-a-day.2897/#post-51784

 

it says bbc I player from 6 am is it really going to be broadcast to so few viewers . I am probably missing something no surprise there.

 

As far as I'm aware, it won't actually be broadcast in the traditional sense - it will be available to stream from 6am, and there will be publicity within the BBC as a whole that will link to it.

 

does anyone think it strange to spend taxpayers money on a documentary type programme and then only put it out on an online platform . for those who do not know the bbc is funded by taxation through licensing.

 

To quote myself from another thread

They do this apparently so as to increase the viewing figures of their content, due to the youth of today viewing less live TV and more on-demand programmes.

 

thanks for your reply being middle aged now I have never watched anything on I player. very rarely watch television these days cognitive issues can make it very difficult as you probably know.

 

http://www.bbc.co.uk/news/newsbeat-44004882

Link to the documentary itself (it's embedded in the above article as well),
https://www.bbc.co.uk/iplayer/episode/p065b4lp/newsbeat-documentaries-me-and-me

 

If we keep an eye on their youtube channel they might put it up (for those outside the UK):

https://www.youtube.com/user/Radio1Newsbeat/videos

 

Just watched it. I would put it in the pretty good category. There will always be things that we would prefer were different but the overall messages were good: psychologisation of ME is extremely unhelpful and quite possibly dangerous, more biomedical research is needed, and it does shine a light on how serious ME can be for some people.

 

Pretty good, yeah. For those who are thinking of diving in:

Visits with two severely ill patients, a brief insight into mild ME, a visit to the U.K. biobank.

I’m pleased to see severe ME further represented in media. One of my bugbears is the 25% statistic that’s used to show representation of severe ME among people with ME. It’s anecodtal and somewhat self selecting but given the amount of people I speak to online with this condition I feel like that percentage should be far higher, so representation in media like this is always good.

 

Another article on ME from BBC Newsbeat today, this time with a less than desirable headline.

http://www.bbc.co.uk/news/newsbeat-43824503

 

Excellent documentary. Hopefully, if it gets enough online traffic, BBC will also show it on mainstream TV at some point. They've done that with other BBC3 docs.

 

I'd like to see this statement in full: