Blog: Precise.ly: New name, same mission. [Company is part of the 5 year NIH funded multi-center study]

[Andy]

What’s happening at Precise.ly?
We’ve recently been selected as a patient tracking platform for a 5-year, NIH-funded myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) study with Bateman Horne Center, directed by Lucinda Bateman, MD and Suzanne Vernon, PhD, Jackson Laboratory’s Derya Unutmaz, MD, W. Ian Lipkin, MD at Columbia University, and Maureen Hanson, PhD, at Cornell University.

This study leverages our long-standing partnership with ŌURA, maker of a sleep and activity tracking ring, which will be worn by ME/CFS patients. Gathering accurate sleep metrics, heart rate variability, and patient mobility from the ring combined with tracked symptoms, treatments, and genetics on Precise.ly will become a cornerstone for mapping individual patient experiences.

ME/CFS has historically been grossly misunderstood, and research into the condition has been woefully underfunded. We’re honored to be part of this important work—we hope it’s just the start of expanded, well-funded research and deserved support for the ME/CFS patient community.

http://blog.precise.ly/2017/11/15/precise-ly-new-name-same-mission/

A couple of reviews, the first that appeared in a Google search, of the Oura ring
https://www.alexfergus.com/blog/the-one-wearable-to-rule-them-all-oura-ring-review
https://sleeptrackers.io/oura-ring/

 

[andypants]

I have the Oura and tried Precise.ly for a while, but it was too much effort to keep up. It was in the very early days though, so I'm curious to see how this works out The ring certainly tracks all the right things, it's extremely helpful.

 

[NelliePledge]

I’ve got an Oura ring. They are set up for healthy people would be good if they could do a version of their app that is ME adapted so you wouldn’t get the irrelevant comments. Also needs an upgrade to include heart rate monitor during the day not just the snapshot HRV score from your overnight results. Also I find it is only accurate up to a point. Seems to be unable sometimes to tell the difference between me watching tv lying on the sofa and being horizontal in bed asleep. I know if you’re relaxed you can nod off without realising but I’m pretty sure that didn’t happen.
It would be good if they look at sleep issues I have loads of R.E.M. and very little deep sleep. I’m sure this is an issue but no point taking it to my GP based on discussion about melatonin and sleep study not being an option where I live.

 

[Revel]

would be good if they could do a version of their app that is ME adapted so you wouldn’t get the irrelevant comments.

. . . a penny for every time I've told my activity tracker to "F*** off!" when it vibrates and sends me the message to "Get up and at 'em".

 

[Diwi9]

I’ve got an Oura ring. They are set up for healthy people would be good if they could do a version of their app that is ME adapted so you wouldn’t get the irrelevant comments. Also needs an upgrade to include heart rate monitor during the day not just the snapshot HRV score from your overnight results. Also I find it is only accurate up to a point. Seems to be unable sometimes to tell the difference between me watching tv lying on the sofa and being horizontal in bed asleep. I know if you’re relaxed you can nod off without realising but I’m pretty sure that didn’t happen.
It would be good if they look at sleep issues I have loads of R.E.M. and very little deep sleep. I’m sure this is an issue but no point taking it to my GP based on discussion about melatonin and sleep study not being an option where I live.

Oura is releasing a new model in April 2018, much smaller than the current model. I believe it will include better HR monitoring options.

ETA: https://ouraring.com/?utm_campaign=L1EO&utm_medium=email&utm_source=intercom

 

[andypants]

Oura is releasing a new model in April 2018, much smaller than the current model.

I have a coupon code for 50% off on pre-orders if anyone could use it (my old oura still works, so no new fancy for me)

 

[Andy]

I wasn't impressed to read this, as part of What Has Changed? | The New Oura Ring (https://blog.ouraring.com/blog/difference-between-first-and-new-oura-ring/)

The three Oura scores – Sleep, Readiness and Activity – remain at the heart of the Oura app. Furthermore, the Oura focus continues to be on sleep and recovery from mental and physical strain. As a result, the new ring will not track heart rate 24⁄7 or heart rate during sports performances. We have added on-demand HR and HRV tracking for use during meditation and breathing exercises. The ring automatically tracks restful moments, such as naps, during the day.

I currently use a Fitbit and one of the features I like is the 24/7 heart rate tracking. I like the idea of the Oura, as it's contained in a ring, and there are some extra features that I like the look of, but the lack of the 24/7 not only lets it down for me, but also makes me wonder how useful it will be in the NIH multi-centre studies as well.

 

[Andy]

I have a coupon code for 50% off on pre-orders if anyone could use it (my old oura still works, so no new fancy for me)

50% off is a lot. I may rethink my insistence on 24/7 heart rate monitoring....

 

[andypants]

I currently use a Fitbit and one of the features I like is the 24/7 heart rate tracking. I like the idea of the Oura, as it's contained in a ring, and there are some extra features that I like the look of, but the lack of the 24/7 not only lets it down for me, but also makes me wonder how useful it will be in the NIH multi-centre studies as well.

It is the downside of having such a small and neat monitor. I use a polar a370 as well for daytime heart rate and AT alarms. The screen is an important part of that, which would be difficult with the ring anyway.

I use the apps for both, then track the numbers I want to follow closely in LogsAll to combine them. I like that both of them can stay on in the shower, as I would forget to take them off anyway.

 

[NelliePledge]

I'm definitely not upgrading if they haven't got HR sorted yet

 

[Diwi9]

I'm definitely not upgrading if they haven't got HR sorted yet

If POTS is a major symptom, the Oura is not a substitute for a HR monitor. It has worked for me, but my POTS is mild/intermittent. The small heart rate monitoring that Oura provides helps me know my baseline for a given day. Typically if it is high, it's a sign that I'm vulnerable for a crash. The sleep tracking is really good (as is the activity monitor) and the reason I purchased one in the first place.

 

[NelliePledge]

If POTS is a major symptom, the Oura is not a substitute for a HR monitor. It has worked for me, but my POTS is mild/intermittent. The small heart rate monitoring that Oura provides helps me know my baseline for a given day. Typically if it is high, it's a sign that I'm vulnerable for a crash. The sleep tracking is really good (as is the activity monitor) and the reason I purchased one in the first place.

I can't get my head around what HRV is telling me and what a normal one looks like any suggestions for (plain English) info on this?

 

[Diwi9]

I can't get my head around what HRV is telling me and what a normal one looks like any suggestions for (plain English) info on this?

I don't understand HRV and how to properly monitor it.

I should clarify that I was using Oura's Resting Heart Rate tracker. I noticed that when my HRH was between the upper 40's and low 50's, I was doing better. If it began to creep up and get into the 60's, I was in a crash.

 

[andypants]

I can't get my head around what HRV is telling me and what a normal one looks like any suggestions for (plain English) info on this?

I don't understand HRV and how to properly monitor it.

There's a series of blogpost about how to monitor and use HRV for ME/CFS here.

There's a lot of text (but nice screenshots and examples too). Important point about HRV - like heart rate it's very individual. You'll need to track it over time to learn what are your optimal levels and warning signs. I can give you some personal examples if it's of any use to you, just send me a PM. For Oura users Oura Cloud will give you better use of HRV than the app.

 

[andypants]

I should clarify that I was using Oura's Resting Heart Rate tracker. I noticed that when my HRH was between the upper 40's and low 50's, I was doing better. If it began to creep up and get into the 60's, I was in a crash.

Same principle with HRV, seems like you've already got it!