Patients were involved in reviewing this prior to publication. One of them was Paul Garner - I don't recognise any of the other names - he may well be reponsible for the bolding of "if tolerated".I like that they recommend pacing and emphasise that graded increase of exercise should be done only if tolerated. Also nice to see recommendations of patient peer support groups.
That is a critical qualifier. It makes it symptom driven, which is pacing not GET.Self pacing and gradual increase in exercise if tolerated.
Agreed but it’s not a bad start and hopefully they could be persuaded to revise it with information about PEM as patients begin to register that the time frame for any anticipated recovery is stretching and get a better understanding of what PEM is and how it affects them in practice.This needed an explanation of PEM.
Without it, there is the risk of symptoms being attributred to deconditioning when they have nothing to do with it.
This article, intended for primary care clinicians, relates to the patient who has a delayed recovery from an episode of covid-19 that was managed in the community or in a standard hospital ward.
For patients who were not admitted to intensive care, British Thoracic Society guidance on follow-up of covid-19 patients who have had a significant respiratory illness proposes community follow-up with a chest x ray at 12 weeks and referral for new, persistent, or progressive symptoms.26 For those with evidence of lung damage (such as persistent abnormal chest x ray and oximeter readings), referral to a respiratory service is recommended; subsequent early referral to pulmonary rehabilitation probably aids recovery.
I like that they recommend pacing and emphasise that graded increase of exercise should be done only if tolerated.
But Chalder, Sharpe, Moss-Morris et al promulgate that for ME and CFS patients, membership of peer support groups associated with poor outcome:
Benefits of peer support group membership was also mentioned in the June 2020 document:
https://www.england.nhs.uk/coronavi...needs-of-inpatients-recovering-from-covid-19/
After-care needs of inpatients recovering from COVID-19
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But Chalder, Sharpe, Moss-Morris et al promulgate that for ME and CFS patients, membership of peer support groups associated with poor outcome:
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Are there other disease/illness groups where the main clinician/researchers are so negative about peer-support groups and relevant charities?
Though this group have real problems understanding that association is not causality and invariably decide on a direction of causality that suits their own preconceptions regardless of other evidence.
I am glad they are listening to those who know (patient peer reviewers) what they're talking about!