Broken Battery Updates

The Scottish Parliament’s Health, Care and Sport Committee #MECFS and #LongCovid highlights. 2 September 2026. (34 mins)


More info on the meeting:

Full video (3hrs 23 mins)
 




TW: German TV report from August about the Gaberdil family, whose daughter, severely ill with #MECFS, was admitted to a psychiatric ward against her parents’ wishes after her illness was wrongly treated as Munchausen syndrome by proxy.​
They have not seen her since December.​
[Clip]​
Munchausen syndrome by proxy is now generally referred to as Fabricated or Induced Illness (FII), when a parent or carer exaggerates or deliberately causes symptoms of illness in a child.​
Families of children with ME/CFS have faced similar accusations in the UK for decades.​
A 2017 Action for ME survey found that 22% of families had faced a safeguarding or child-protection referral, with almost half involving allegations of FII.​
Excerpt from the action for ME report
What did our survey find?
With 270 families responding to our Children's Services Team survey, which ran for three months from February to April 2017, results indicate that:​
  • 96% of respondents felt that a lack of understanding of M.E. negatively impacted on the support that they receive
  • 90% agreed they were concerned that professionals involved with their child did not believe them
  • one in five (22%) said a safeguarding/child protection referral had been made against them
  • nearly half of these referrals related to claims of fabricated/induced illness or FlI (previously known as Munchausen's by Proxy), which occurs when a parent or carer exaggerates or deliberately causes symptoms of illness in the child; this heightened frequency of FlI claims sits widely outside the national prevalence rate
  • a smaller number of the claims were of neglect (17%) or emotional (10%) or physical (2%) abuse
  • 70% of all cases were dropped within a year.
Clip subtitles by Fiona Hart.​
Full video (13 mins)
ME/CFS: Neue Erkenntnisse aus der Forschung | 3Sat NANO | August 20th 2026​


 
Bluesky / XCancel:


Today marks 25 years since 9/11. 8 months after the attack, psychiatrist Simon Wessely argued that illness reported around Ground Zero was being wrongly attributed to environmental toxins, suggesting “World Trade Centre Syndrome” was driven by social and psychological factors.​
Screenshot from the article
Tens of thousands of people got sick, and many have died since then from illnesses contracted at Ground Zero. Researchers have identified more than 60 types of cancer and about two dozen other conditions linked to Ground Zero exposures (Scientific American).​
Wessely was also one of the main architects of the psychological model of #MECFS that dominated care for decades. This approach was eventually dropped by NICE in 2021 after the evidence was found to be flawed and there was considerable evidence of harm.​
Wessely has repeatedly applied psychological or sociogenic explanations to unexplained illnesses, such as Gulf War illness and the Camelford water poisoning incident. Absence of an explanation doesn’t mean that the illness is psychosomatic or psychological.​
Wessely’s 2002 article
www.spiked-online.com/2002/05/23/w...
Wessely on Gulf War illness, ME/CFS and the Camelford water poisoning
x.com/abrokenbatte...

 
Linked post from 2022 on XCancel:


Gulf War Syndrome & Simon Wessely

"For 30 years they have been disowned, ignored and lied to by consecutive governments, with no positive answers to their questions about exposure to toxic substances and gases & the affect it had on them"​
Sarin gas blamed for Gulf War syndrome
Sarin gas blamed for Gulf War syndrome​
US scientists say they now know why thousands of soldiers who served in the 1991 conflict fell sick.​
BBC.COM​

"Even when I was still in the military, I was getting illness after illness... when I questioned whether it could be anything to do with my service in the Gulf or what we were exposed to, the military line was 'You're talking nonsense, there's no evidence.'"​
But new research links the nerve agent Sarin to Gulf War Syndrome in >1000 veterans.

Sarin was released into the air when caches of Iraqi chemical weapons were bombed, it is usually deadly but soldiers were exposed to low doses which is thought to be the cause of GWS.​
In 2011 the Ministry of Defence said:

"The UK and the US have undertaken a substantial amount of research into Gulf veterans' illness. The research has indicated that there is no illness which is specific to Gulf veterans."​
Two decades on, battle goes on over 'Gulf War Syndrome'
Two decades on, battle goes on over 'Gulf War Syndrome'​
Twenty years on, many Gulf War veterans feel abandoned by their government as the causes of high rates of ill health among them remain unexplained.​
BBC.CO.UK​

"Professor Simon Wessely is director of the King's Centre for Military Health Research in London and an adviser to the Ministry of Defence.

He does not believe Gulf War Syndrome exists as a distinct illness."​
Wessely said "Is there a problem? Yes there is. Is it Gulf War Syndrome or isn't it? I think that's a statistical and technical question that's of minor interest...

I don't think we're ever going to be able to take it any further now"​
Wessely said "Even if you gave me £10m [for research], I wouldn't know what to do with it...

I think the only thing worth spending money on is trying to help those who are ill."​
Wessely favours psychological explanations

"The only thing that could have affected so many different people was stress, especially anxiety about chemical weapons, misinformation about Gulf war syndrome & the many vaccinations Gulf troops received."​
Wessely argued that the symptoms and concerns were taken up by the media which played a big role:

“the transmission of rumour was a significant part of the very construction of the condition itself.”​
Simon Wessely
Simon Wessely​
ME-PEDIA.ORG​

At 1:00:05 Wessely was asked about research in the US showing higher rates of illness in troops closer to the front & how very low doses of nerve agents with no acute symptoms give rise to prolonged chronic illness many years afterwards.​
In 2006 Wessely gave a talk about Gulf War Illness and started with the familiar line that he was "nervous" about the talk and had received "some intimidatory threats".​
vimeo.com/52995882#t=60m…​
VIMEO.COM​

The audience member that asked the question sounds like Professor Malcolm Hooper a passionate critic of the psychological approach to ME/CFS that was devised by Wessely & has dominated care for the last 30 years but has recently been abandoned.​
Malcolm Hooper
Malcolm Hooper​
ME-PEDIA.ORG​

Wessely responded - I don't think the evidence is compelling, if chemical weapons were used there would have been casualties. I've never seen any convincing evidence they were used. I don't think thats credible. I think there are many other pointers that are much more compelling.​
Wessely was awarded a Knighthood for services to military healthcare and psychological medicine in 2013.

"His academic work has led to a better understanding of Gulf War Illness and to more effective psychological support for the Armed Services."​
Professor awarded knighthood for service to military healthcare
Professor awarded knighthood for service to military healthcare​
A university professor who has improved mental health services for the Armed Forces has been made a Knight Bachelor.​
GOV.UK​

Wessely's work on ME/CFS has also been discredited. Research supporting his treatments was all graded as 'low' or 'very low' quality by NICE in 2021. The treatments were withdrawn because are ineffective and potentially harmful.

More info:​
Unroll Now
Wessely also suggested psychological factors were responsible for ill health reported after contamination of the water supply in Camelford in 1988.

He was wrong and the UK government formally apologized 25 years later.​
Tweet image 1
Wessely also argued that ill health reported following the collapse of the Twin Towers on 9/11, was a “consequence of an ideology that tells us that our physical environment is responsible for most of our bodily discomforts and ills.”​
World Trade Centre syndrome
World Trade Centre syndrome​
We are healthier than ever - but fear is making us ill.​
SPIKED-ONLINE.COM​

"Tens of thousands of people got sick, and many have died since then from their illnesses contracted at Ground Zero... Researchers have identified more than 60 types of cancer and about two dozen other conditions that are linked to Ground Zero exposures."​
scientificamerican.com/article/health…​
SCIENTIFICAMERICAN.COM​

Thanks to @maxwhd for highlighting the Gulfwar Video.​
The Gulf War Illness Breakthrough and why it Matters to ME/CFS/FM and long COVID
by Cort Johnson​
The Gulf War Illness Breakthrough and why it Matters to ME/CFS/FM and long COVID - Health Rising
The Gulf War Illness Breakthrough and why it Matters to ME/CFS/FM and long COVID - Health Rising​
For decades it was a medical mystery. For many years it wasn’t even believed to exist. It all started back in the Kuwaiti desert over 30 years ago. Militarily, the first Gulf War was pretty much a...​
HEALTHRISING.ORG​

Cause of Gulf War syndrome identified in landmark study
Scientists say soldiers suffering from mysterious symptoms since the 1991 war are likely to have been exposed to hazardous biological and chemical agents​
Cause of Gulf War syndrome identified in landmark study​
Scientists say soldiers suffering from mysterious symptoms since the 1991 war are likely to have been exposed to hazardous biological and chemical agents​
THETIMES.COM​


 
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