Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

[Trish]

'Something joyful at 3 o'clock'. That made me laugh, @Mithriel. I agree about the timetabling nonsense. The OT from our local ME/CFS clinic when I last saw her about 10 years ago was very keen on activity diaries and forward planning. I impressed her most when I typed up and printed off a schedule for myself and showed it to her. I stuck to it for half an hour, then it went in the bin.

 

[Invisible Woman]

The use of activity timetables just shows how out of touch with the realities of ME these therapists are. I can never predict what I can do on any day or at any time of day.

Yep. Not really getting the concept of a fluctuating condition there are they?

If you could just write up a nice timetable and keep to it, there wouldn't be a problem, now would there?

It's like sleep hygiene for a condition where there is underlying issues with sleep. Expecting sleep hygiene routines to magically solve the problem shows an impressive level of stupidity.

It literally equates to telling a diabetic that if they practise eating sugar it'll fix the problem. Preferably munching those cubes on a timetable.