Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

[MittEremltage]

They will apply their standard formula of "we will rehabilitate you, you are being rehabilitated, you have been rehabilitated, therefore you are no longer disabled, next!"

I also can't see it in any other way. This comes at a time when there is a lot of talk about the increase in sick leave and the Social Insurance Agency is warning that exhaustion disorder (ED) accounts for the largest increase. ED is Lindsäters' entry point in this study.

 

[Utsikt]

I also can't see it in any other way. This comes at a time when there is a lot of talk about the increase in sick leave and the Social Insurance Agency is warning that exhaustion disorder (ED) accounts for the largest increase. ED is Lindsäters' entry point in this study.

I hope the Covid Association is trying to tell them that the increase probably is an increase in LC?

 

[MittEremltage]

I hope the Covid Association is trying to tell them that the increase probably is an increase in LC?

There is so much going on right now, and I don't have the capacity to keep up with everything. But I don't think I've seen any direct questioning of that particular issue. Unfortunately.

 

[Utsikt]

There is so much going on right now, and I don't have the capacity to keep up with everything. But I don't think I've seen any direct questioning of that particular issue. Unfortunately.

I don’t expect you to be able to follow everything, you’re already on top of so much!

We have a huge debate in Norway regarding the increase in sick leave, and fortunately some researchers and doctors have been trying to explain that you have to consider covid as a massive contributor. It’s a shame if the same isn’t happening in Sweden.

 

[Peter T]

I don’t expect you to be able to follow everything, you’re already on top of so much!

We have a huge debate in Norway regarding the increase in sick leave, and fortunately some researchers and doctors have been trying to explain that you have to consider covid as a massive contributor. It’s a shame if the same isn’t happening in Sweden.

Sadly the political debate here in the UK seems to be pretending that Long Covid does not exist in the context of increasing numbers of long term sick/disabled.

 

[MittEremltage]

I don’t expect you to be able to follow everything, you’re already on top of so much!

We have a huge debate in Norway regarding the increase in sick leave, and fortunately some researchers and doctors have been trying to explain that you have to consider covid as a massive contributor. It’s a shame if the same isn’t happening in Sweden.

I didn't perceive you as demanding; it's mostly that I'm so incredibly frustrated that I can't keep up.

The Swedish Covid Association currently has a campaign to show the extent of post-Covid, where they themselves have funded a SIFO survey. 'Sweden' is not trying to find out the extent of the problems themselves, so the discussions are at the level of 'we actually exist'." As @Peter Trewhitt describes it…

https://covidforeningen-se.translat..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

[Utsikt]

@Peter Trewhitt @MittEremltage
That’s the level of the Norwegian discussion as well. Some politicians have been talking about LC, but they don’t seem to understand the gravity of the situation.

 

[MittEremltage]

but they don’t seem to understand the gravity of the situation.

Or is it a choice not to understand?

 

[Utsikt]

Or is it a choice not to understand?

Maybe a bit of both. My parents don’t fully understand either, even though they have to care for me because I’m bedbound as a result of covid.

It’s difficult to question your reality, but it’s also convenient for politicians to just not do it properly.

 

[rvallee]

Sadly the political debate here in the UK seems to be pretending that Long Covid does not exist in the context of increasing numbers of long term sick/disabled.

Not just that, but I've seen many discussions on UK social media insisting that it's only happening in the UK, completely detaching any possibility of this being because of COVID, since many literally insist that since it's not happening anywhere else, it can't be that. So the same "this is only happening here" discussion is happening in multiple countries at the same time. Absolute insanity. Experts are destroying the concept of truth even more efficiently than the most fevered conspiracy fantasies.

I see a lot of people, especially experts, deploring how some things are being handled, looking at the US becoming pro infection, the same herd immunity 'logic' being applied to measles and general indifference to bird flu, and being completely unwilling to make any connection to the expert and government messaging on COVID that has fueled the conspiracy movement so much in recent years.

They are making literally all the same arguments that apply with COVID, even as they themselves argue the very same things that the conspiracy crowds are pushing. The world is sinking deeper into madness as time goes on.

 

[MittEremltage]

At the end of May, I published a series of posts about consent in research, particularly focusing on the Oslo Consortium's and Lindseter's Fatigue Study.

You can find the first post here (auto-translated). At the end of the post, you will find links to all the posts in the series.
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

After I published these posts, I have been contacted by several individuals who were subjected to recruitment attempts for the study and they have shared ethical concerns regarding how the recruitment process was conducted. One of the patients, for example, was told that participation in the study was the only chance to get better.

Knowledge is power:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

An unacceptable procedure:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

[Utsikt]

At the end of May, I published a series of posts about consent in research, particularly focusing on the Oslo Consortium's and Lindseter's Fatigue Study.

You can find the first post here (auto-translated). At the end of the post, you will find links to all the posts in the series.
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

After I published these posts, I have been contacted by several individuals who were subjected to recruitment attempts for the study and they have shared ethical concerns regarding how the recruitment process was conducted. One of the patients, for example, was told that participation in the study was the only chance to get better.

Knowledge is power:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

An unacceptable procedure:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

Unfortunately, I can’t say I’m surprised. And there will probably be no consequences, because the patients fear the consequences of speaking up.

 

[MittEremltage]

A recently published scientific paper on a study investigating how doctors manage patients with fatigue confirms that it is inappropriate for primary care doctors to recruit patients to the Fatigue Study. Bizarrely, four out of five researchers in this study are also working on the Fatigue Study (linked to Oslo Chronic Fatigue Consortium).

Read more on my blog (Google Translated):
Newly published article confirms ethical problems with the Fatigue Study

Thread on S4ME about the article:
Physicians’ experiences of assessing and supporting fatigued patients in primary care: a focus group study, 2025, Samuelsson

And the Oslo Consortium: Oslo Chronic Fatigue Network

 

[Utsikt]

A recently published scientific paper on a study investigating how doctors manage patients with fatigue confirms that it is inappropriate for primary care doctors to recruit patients to the Fatigue Study. Bizarrely, four out of five researchers in this study are also working on the Fatigue Study (linked to Oslo Chronic Fatigue Consortium).

Read more on my blog (Google Translated):
Newly published article confirms ethical problems with the Fatigue Study

Thread on S4ME about the article:
Physicians’ experiences of assessing and supporting fatigued patients in primary care: a focus group study, 2025, Samuelsson

And the Oslo Consortium: Oslo Chronic Fatigue Network

Very good post! I had not thought of the connection and the implications when I read the study.

 

[MittEremltage]

Very good post! I had not thought of the connection and the implications when I read the study.

Thank you!

 

[MittEremltage]

The fatigue study is funded by FORTE and the Swedish Social Insurance Agency, among others. The call was called "Mental ill health with a focus on rehabilitation, collaboration and a sustainable working life."

FORTE has now published an interview about the study with the responsible researcher Elin Lindsäter on its website.

Autotranslated link: Fatigue study helps the exhausted

From the article:

– You may be very afraid of doing different things, that it will worsen the condition. We are trying to help people with those kinds of mechanisms in this treatment. It does not solve why they get sick in the first place, but it may relieve them of some of the suffering. The participants in the pilot study think that the treatment is credible, and that they can be helped by it, says Elin Lindsäter, associate professor at Karolinska Institutet, who is researching fatigue in a fatigue study.

In the movie Lindsäter says, among other things.

"Because, there are several studies that have seen that initially there are different types of disease mechanisms that make a person feel so bad and become so paralyzingly tired, but then there are other things that also affect that the fatigue may not go away. And you feel very bad if you can't manage to live your life as before, so that some people become very depressed, worried about the future, you might change your sleep pattern in ways that make it impossible to cope with the day. And you might be very afraid to do different things, because you're afraid of making your condition worse. And those are the kinds of mechanisms we try to help people with in this treatment. It doesn't solve why they got sick in the first place, but it might relieve them of some of the suffering."

My own reflections in a (autotranslated) blog post: Lindsäter about the Fatigue Study at FORTE

”Elin Lindsäter is, together with several of the other researchers in the Fatigue Study, part of the same network (Oslo Chronic Fatigue Consortium) as Michael Sharpe, which I mentioned in yesterday's post . This is a network that believes that ME and other post-infectious diseases are due to incorrect thinking patterns, fear and avoidance.

The fatigue study and what Lindsäter says in the interview with FORTE must be seen in light of what the consortium preaches.”

 

[rvallee]

Completely clueless people with clueless methods remain clueless, express full confidence in their superior understanding of things they are totally clueless about. Who could have possibly known this wouldn't achieve anything? What a system.

And yet again, they are pretending to be doing "pilot studies" of things that have been the standard model for decades, in fact explicitly boast of such experience delivering the thing they are still pretending to be testing the basics of, such as "is it credible? do patients accept it? do they like us? what do they think of us? do you think they like me?" Nothing but a total scam.

And yet their entire model of us is that we flat out refuse to try things like this, when just about the only thing they have confirmed in decades of trying it again and again literally on tens of thousands, besides the obvious fact that none of this works, is that they keep finding that patients are, in fact, more than willing to try their pseudoscience. It's hard to put in context just how morally bankrupt this is.