ChronicleBio

[DHagen]

Yes, American research is, after all… very American! I also get the impression that, with the notable exception of the Stanford team, a large proportion of American researchers and ME/CFS patients don't really appreciate the importance of DecodeME or what this study could contribute to our fundamental understanding of the disease. They literally couldn't care less.

[Edited to remove self-hating, self-indulgent screed]

Sadly, I think this is an accurate appraisal.

 

[DHagen]

You never see these showy MECFS
/LC companies announce a drug trial that shows that they are thinking seriously about the availabile evidence and trying to at least narrow the search space.

Its never like oh here's a dopamine D2 drug or a CRH/orexin affecting drug or here's Campath or heres another CD38 drug or whatever. It's always some random drug that vaguely makes sense if you squint that's not proven for its first indication.

Indeed. It's always a drug in search of a home: After they've tried giving it to everyone else, they eventually decide to give the really hopeless cases a try. These days, if you can't turn a null result with LC or ME/CFS patients into some additional funding to identify subgroups or a side-line marketing to specialty clinics, what good are you?