Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review.., Cochrane, Crawley et al, 2021

Full title: Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review of Economic Evaluations

Open access, https://link.springer.com/article/10.1007/s40258-021-00635-7

 

If some thing does not work, how can it be cost effective?

Give there is some evidence that UK specialist ME/CFS services primarily providing CBT/GET result in people working fewer hours and claiming more state benefits is this ‘research’ completely barking up the wrong tree.

 

This is literally made-up of imaginary numbers presented haphazardly without making any sense. It doesn't take into account most of the costs and so literally doesn't do an actual cost-effectiveness. And obviously something that is not effective cannot be cost-effective.

It quite literally argues that it is cost-effective without presenting any actual evidence, there is no actual calculation being done. Even when they have to use real numbers, dollars, they can't. Then suggests more research is needed since it can't actually conclude anything, simply says so.

This is sick. These people play with millions of lives like we are mere ants in their garden. It's absolutely disgusting the complete disregard they have for our lives.

Not the generic "of therapies". Which one? Nobody cares. Complete free-for-all. It's been used in practice for over 2 decades, they can't deny that there is no evidence whatsoever and still they argue for it, promote it. Grotesque.

This is a level beyond lies, damned lies and statistics. The statistics don't even support that and they just say whatever they want because nobody cares, nobody checks the substance here, they merely skim and nod. I am 100% certain that no one but the authors actually read the paper, including the reviews. A quick 5-minute cursory glance and that's it. This is Potemkin medicine, completely hollow.

 

20 is PACE. There was something in their cost-effectiveness paper that was missing, wasn't there? And we're still waiting for LTFU data of course.

They actually say:

I wonder who will be providing this good quality evidence?:

 

Because of course cost-effectiveness is far more vital a consideration for the NHS than whether something actually works, isn't it?

 

Fascinating that cost of care is being taken into account when there are no effective treatment. I wonder whether Crawley and her buddies would like to move on to diseases that spends millions if not billions in very expensive drugs.

We haven’t cost the health care system much, if at all because often times it is not even safe to see a doctor.

 

This is beyond parody. Baffling.
@dave30th aware?

 

words fail me ( a recurrent effect of EC's work)
what a clusterf***

 

I must be reading this differently to other people.

this seems more like ECs current attempt to seem a bit more bio than psychosocial
eg
https://www.s4me.info/threads/exploring-the-prevalence-of-pompe’s-disease-in-patients-diagnosed-with-cfs-me-2021-crawley.19060/
or even
https://www.s4me.info/threads/caden...ple-with-cfs-me-loades-crawley-ongoing.18476/

 

Amitriptyline to under 14s?