Could the kynurenine pathway be the key missing piece of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) complex puzzle?, 2022, Kavyani

I'm sure that Chris Ponting at the University of Edinburgh would give his honest opinion on the pros and cons of working with patients if you or someone else from your team wanted to get in contact with him. DecodeME has both a Patient and Public Involvement (PPI) Steering Group (equivalent to a patient advisory group) as well as patients and/or carers as team members working to deliver all the different aspects of the study.

 

Agreed
Basically there's no objective evidence that psychological interventions (CBT, GET etc.) work. The evidence from PACE etc. is that the little objective evidence collected indicates no increase in hours worked +++ (objective indicators).
We may have some fairly robust exchanges on this site but the bottom line is folks here expect objective evidence.