Daily Mail: Royal Wedding harpist on her diagnosis of ME/CFS

Not too bad (just avoid the usual ignorant reader's comments at the end of the article):

http://www.dailymail.co.uk/femail/article-5358509/I-played-Kate-Wills-reception-struck.html

 

Down vote the idiots, up vote the reasonable ones, no need to log in to do that.

 

Generally very good, especially this bit:

The usual quackery plug (hey, it's the Daily Mail after all):

It sounds like she's improved and/or stabilized, not recovered:

I think Dr Charles Shepherd did a great (and diplomatic) job of pointing out the same issues with the cause and extent of her recovery:

Now to read the comments ...

 

Brave! I got through a fair few, down voting trolls, up voting anything positive, before my browser crashed. It was a relief to be honest!
The first 'harping on' joke wasn't funny and the others even less so.
The Mail is a fuckwit magnet.

 

I'd noticed that On the plus side, the trolls were extra daft and easy to refute.

 

I'd file this under "not too bad" for a big publication. Shame to see Optimum Health Clinic get a plug, they seem to be everywhere these days. Still, clickbaity headline including the royals might mean that a few more people might read it than usual

 

Shooting fish in a barrel! No fun at all when it's so easy.
Having said that I'm going to have to go back and see what you said to them...

 

So, how come it's always me that finds these articles? Oh . . .

 

Oh, I'm so sorry - I didn't mean you @Revel! I meant the daft trolls.
I'm only being snotty so I don't get sucked in to the side bar of shame and start caring about the Kardashians or Katie Price's ex husbands.

 

No worries, @Liv aka Mrs Sowester! I only read it when I am "foggy", as the content doesn't tax me too much.

 

This is actually an old story; I thought it rang a few bells.
http://www.theoptimumhealthclinic.com/2017/07/secrets-to-recovery-concert-harpist-claire-jones/

http://www.meassociation.org.uk/201...mous-harpist-talks-to-the-times-3-march-2015/
Back in July 2016 she became a patron of the OHC........
and of course she has a new album out

 

Overall it's not a bad article. My daughter read it out earlier, but did not look at the comments.

When I spent 12 weeks in hospital, mainly on my back (late 70s) I could only read The Express or the Mail. The others were too large and awkward when horizontal!
I guess in those days there was less Celebrity Gossip.

 

I got sucked into reading about Paul from s club 7.... How did that happen?....up voted all the good ones and down voted trolls though

 

There are a couple of issues as I see it @ Perrier:

Some (few) people do recover or at least improve significantly. Without a biomarker we simply cannot be sure that they have the same illness. It may be a variant, or better management in the early days or just luck.

We are more likely to hear about those who have improved significantly. The rest of us are too ill and isolated.

Celebrities are more simply more likely to attract attention and be newsworthy.

Misdiagnosis is a big problem - for example Esther Rantzen's daughter had ME and was in a bad way. She had a miracle cure with the lightening process....bht still had to be very careful etc. In the end she turned out to be a coeliac.

 

That grinds my gears, suffering for nothing and used as cannon fodder to abuse us

 

Yeah, and at one point Esther Rantzen was a household name (very popular TV presenter back in the day) so people would look at you and say : "didn't Esther Rantzen's daughter have that and she got better" in an accusing tone.

Sigh

 

The comment section was once analysed by adding quotes from Mein Kampf and seeing what the reaction was. The results were depressing.

We must thank brave explorers like @Revel for their sacrifice in navigating the fetid swamps and reporting back to us of the strange sights and creatures encountered.

 

In this case it sounds like she stabilized and improved a bit, but hasn't recovered. She cannot do things like a normal person would, without having to worry about the consequences. Basically, it sounds like she's pacing and can do a bit more due to that.

 

Cheers! Think of me as S4ME's very own "Indiana Jones and the Paper of Doom"!

 

Yes I thought Charles' comments about people who (are lucky enough to) improve, often do not fully recover to their previous levels of health and activity. NB My version of what he said.
I think the article mentioned that she is off on tour soon, or at least back to public performance. I hope for her sake that she has built in plenty of rest etc.

Also, there are millions of people in the world who work long hours at stressful jobs and do not end up with ME, why are they never mentioned!!!

ME is NOT BURNOUT.

Yes I know I am ranting at the "converted".