David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

Andy

Andy

Retired committee member
So it’s been a year since the last crowdfunding campaign for Trial By Error--my investigative reporting and public health project. While Trial By Error began 3+ years ago as an in-depth look at the PACE trial, it has expanded to include other research from the GET/CBT ideological brigades and some of the controversies around the illness or cluster of illnesses known variously as ME, CFS, ME/CFS, and CFS/ME.

In the last three years, I have seen patients’ suffering and their courage. I am in awe of their analytical skills and scientific smarts. This project has been and continues to be such a moving and rewarding experience for me. I had no idea it would last this long, but my work seems to be helping to push events forward. That’s why I am seeking another round of support through Berkeley’s crowdfunding platform. The funds I raise through April 30th will go toward covering my position for the fiscal year from July 1, 2019 to June 30, 2020.
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https://crowdfund.berkeley.edu/project/14941
 
dave30th said:
yes it's started. I really dislike having to raise money this way but, well, there it is...not much choice.
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Best money I've ever spent. It shouldn't have to be this way but to have you helping us is an honor and worth every penny. I'll make my donation in Michael Sharpe's name. He'll love it (but I won't tell him because he blocked me anyway, unless he reads the forum...).

At some point, and maybe we're already there, it will be worth putting this to video. It reaches much more people and it's become surprisingly cheap. Lots of good teams out there who can produce great documentary from a script and reference material. I'd put in some funds for that.
 
dave30th said:
yes it's started. I really dislike having to raise money this way but, well, there it is...not much choice.
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Please don't feel bad, your doing so much for us and we owe you.
If i could afford to fund you myself full time i would be doing so.
I saved up some extra cash for this year in anticipation of your drive

rvallee said:
I'll make my donation in Michael Sharpe's name
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Am i remembering correctly that there is a problem on Berkeley's end if you do this or am i thinking of some other crowdfunding somewhere else (i get wires crossed sometimes).
 
Alvin said:
Am i remembering correctly that there is a problem on Berkeley's end if you do this or am i thinking of some other crowdfunding somewhere else (i get wires crossed sometimes).
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the problem was people making up fake names that were actually quite funny but could be perceived as offensive by the parties being teased. But it also complicated Berkeley's effort to keep track of who was donating.
 
dave30th said:
the problem was people making up fake names that were actually quite funny but could be perceived as offensive by the parties being teased. But it also complicated Berkeley's effort to keep track of who was donating.
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I see
Could a second optional line be added by Berkeley, so people could donate in memory of or in lieu of?
I seem to recall people donating to Planned Parenthood crediting Mike Pence, as a form of protest against attempting to take away their rights.
 
Alvin said:
Could a second optional line be added by Berkeley, so people could donate in memory of or in lieu of?
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I think there's a place for comments, isn't there? I've tried to make suggestions to the Berkeley platform folks but it's hard because really they're optimizing it for projects that mostly have more to do with stuff happening on campus. My effort is a bit unusual among the group.
 
Thank you so much for giving us another year of your wonderful investigative work. Again, I wish Berkeley would take PayPal, as it's the only way I can donate. They could really bring in a lot more from those in the same situation if they can add that option.
Pretty please, Berkeley? With sugar on top? :emoji_doughnut:
 
I tjought
EzzieD said:
Thank you so much for giving us another year of your wonderful investigative work. Again, I wish Berkeley would take PayPal, as it's the only way I can donate. They could really bring in a lot more from those in the same situation if they can add that option.
Pretty please, Berkeley? With sugar on top? :emoji_doughnut:
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I thought i paid via paypal last year ...? Maybe not . Get paid this week so contribution coming soon , just wish it could be more.
 
Great news and so much appreciated. You’ve done an amazing job. its a shame there are so few health/science- journalists of your capacity and integrity @dave30th.

Your work is so important in the moment of time, fighting the pseudoscience windmills of hell. I have no doubt in my mind that in hindsight, when these windmills finally stop, your contributions will be considered legendary.
 
dave30th said:
yes it's started. I really dislike having to raise money this way but, well, there it is...not much choice.
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Don't think of it that way.
The ME community want you to continue, that's all there is to it.

When you think of how much a certain charity CEO is paid, and (although MS doesn't see the comparison) how much QMUL spent to prevent the release of the PACE data........
 
Please don't feel bad asking for money. From my perspective, giving feels like i get to play my wee part in what's going on to try and change things for the better. Thank you for letting us be part of this. Plus you give us hope and often make me smile.
 
Alvin said:
I see
Could a second optional line be added by Berkeley, so people could donate in memory of or in lieu of?
I seem to recall people donating to Planned Parenthood crediting Mike Pence, as a form of protest against attempting to take away their rights.
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That's what I meant :) Should have said in his honor. I think there is a field for a short message, but I may be mixing up with the OMF form.
 
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