David Tuller: Trial By Error: The Cochrane Controversy

Discussion in 'General ME/CFS news' started by Kalliope, Sep 3, 2018.

  1. alex3619

    alex3619 Senior Member (Voting Rights)

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    I wasn't going to look into social harm, but I think its worth investigating. Good point.
     
  2. alex3619

    alex3619 Senior Member (Voting Rights)

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    Of course. But in BPS-speak (BiPspeak?) its all bundled under social, as finances are an aspect of society.
     
  3. Barry

    Barry Senior Member (Voting Rights)

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    I still think the dramatic effect on retirement income is sometimes worth spelling out explicitly as part of that though, because it is usually overlooked. It is a serious, cumulative, long delayed, long term harm. A sort of "financial PEM".
     
  4. Barry

    Barry Senior Member (Voting Rights)

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    I think I must have been coming at this from the perspective it's probably much harder to convince officialdom you are unfit for work, and thereby entitled to benefits, if your condition is labelled as psychiatric, especially if medical 'wisdom' suggests if you just tried harder you would get fit enough to return to work again.
     
  5. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Maybe you were thinking of many ill health policies that won't pay out long term if you have a psychological illness. This is precisely the ones that Wezzles and Co were/are advising insurance industries about.
     
  6. Trish

    Trish Moderator Staff Member

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    Moderator note:

    Reminder - this thread is for discussion of David Tuller's article on Cochrane.

    Posts discussing the details of UK state benefits and pensions have been moved to this thread:

    UK state benefits and pensions discussion
     
  7. Kalliope

    Kalliope Senior Member (Voting Rights)

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  8. Dolphin

    Dolphin Senior Member (Voting Rights)

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    That reminds me that in the first Cochrane review of exercise therapy, Peter White is thanked for giving advice. I think there is a good chance he may have biased what they reported.
     
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  9. Adrian

    Adrian Administrator Staff Member

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  10. Esther12

    Esther12 Senior Member (Voting Rights)

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    It's absurd for Sharpe to try to present the planned IPD review as independent of the PACE authors. Chalder argued in court that it was not independent. White funded the meeting where the protocol was devised. That Sharpe is trying to get away with that is just ridiculous.
     
    Last edited: Sep 15, 2018
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  11. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Sharpe never disappoints because he constantly reveals how disingenuous he is.

    How can authors of studies provide expert advice to independent quality assessors?
    Presumably the advice was on how to notice the good bits of the studies and not the bad bits.
    It is a bit like a job applicant giving expert advice to interviewers on who to appoint.

    Sharpe does not appear to realise that he makes it abundantly clear that he lives in a world outside that of practice of scientific method. He really is like the emperor with no clothes, believing that his tailor has made him look magnificent.
     
  12. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Here's another tweet I thought was interesting, but left it at the Monaghan thread.
    https://www.s4me.info/threads/how-t...debate-in-westminster.2513/page-5#post-104495

    I don't know if the phrase was "not becoming of an MP" or "unbecoming of an MP", but he now claims it was becoming? :confused: Gee, this is hard to follow with brain fog..

    https://twitter.com/user/status/1039107991352619009
     
  13. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I think Sharpe is right on this one. He said it was not becoming or it was unbecoming of an MP. That means that it is inappropriate behaviour for an MP with their public position. It has nothing to do with gender. Where he was wrong was to suggest that it might be unbecoming of anyone to point out that poor science is poor. MPs are fully entitled and indeed expected to do that where needed.

    If that makes sense.
     
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  14. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    Sharpe complaining about cherry picking is funny.
     
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  15. James Morris-Lent

    James Morris-Lent Senior Member (Voting Rights)

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    Yes, this is clearly frivolous. That tweet just gives him an actual example of being unfairly accused of something.

    It might be ethical for the tweeter to remove the tweet, and issue an apology and clarification explaining that the word was taken out of context.

    This is such a charged issue, and this sort of allegation can be quite poisonous; I'd rather not see this sort of thing distracting from the actual scientific issues.
     
  16. Barry

    Barry Senior Member (Voting Rights)

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    I agree. It is not a gender issue and is counter productive to fabricate one. It just detracts from the real issue (and plays into MS's hands) of MPs being entitled and expected to call out bad science where it is in the public interest to do so.
     
  17. Guest 102

    Guest 102 Guest

    You are absolutely right, Robert - those most damaged by GET/CBT are those pwME who were coerced into it, but the rest of us are damaged too by its very existence. It was not a therapy when I was diagnosed in pre-Wessely/CFS days - and I am so grateful for that. I would have been far too ill to do GET anyway, but had it existed as a concept it would surely have undone me.
     
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  18. Trish

    Trish Moderator Staff Member

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