DecodeME Q&A webinar, 4pm Monday 6 July

I registered for the above and got this email in reply:

DecodeME said:
Thank you for registering for "DecodeME Webinar".
We have seen an incredible response to our live Q+A so we are having to be a bit creative to allow everyone to take part. There is a limit on how many people are able to join the webinar so you may not be able to join on the Zoom link. We are therefore live streaming it on our DecodeME Facebook which you can access here:
https://www.facebook.com/decodeMEstudy

We will be taking questions from the comments below in the same way we would in the chat function on Zoom so the experience will be the same.

Any questions we are unable to answer on the day, or if our time runs out, we will respond to on our website. www.decodeme.org.uk.

We look forward to seeing you soon!

The DecodeME Team
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@Andy, how can people who aren't registered with FB submit a question?

Do I understand from the above that it will be both on Zoom and FB at the same time?
 
Sasha said:
I registered for the above and got this email in reply:



@Andy, how can people who aren't registered with FB submit a question?

Do I understand from the above that it will be both on Zoom and FB at the same time?
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Yes, I believe so. This isn't the only one that we plan to do, so if you don't get your question answered, or it's not answered later in the FAQ on the website, then there will be other opportunities. As of Friday, we had 1400 people registering for this, so we won't be able to get to everybodies question tomorrow.
 
thanks for updates @Andy my Brain not in gear at the moment so I’ve cancelled my booking so appreciate the opportunity to catch up later.

The question I wanted to ask is about recruitment. Some areas don’t have local ME charities or Facebook support groups. I would be happy to try to publicise the study in my area but it is a big challenge for an individual person with ME is there any help available from AFME/MEA in contacting local press, local organisations/charities?
 
NelliePledge said:
The question I wanted to ask is about recruitment. Some areas don’t have local ME charities or Facebook support groups. I would be happy to try to publicise the study in my area but it is a big challenge for an individual person with ME is there any help available from AFME/MEA in contacting local press, local organisations/charities?
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While we are working on the details we will be looking to enable and help patients advertise the study, so watch this space, essentially.
 
Hi @Andy Good work today. After tuning into the webinar today, I have one suggestion: A prominent timeline or progress chart on the website would really help. Something that clearly shows what stage we are at. People are asking about the questionnaire, whether they've missed the application deadline etc.
 
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