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Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

Discussion in 'ME/CFS research' started by pooriepoor91, Feb 21, 2024.

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  1. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    14,166
    Location:
    UK West Midlands
    What PPI approach was taken by NIH? Because from this distance I find it difficult to envisage that anyone working in partnership with people with ME/CFS on all aspects of the project (rather than seeing us as researchees) would have produced this as the output.
     
    NelliePledge, Jul 26, 2024
    #801
    Lilas, Wyva, RedFox and 8 others like this.
  2. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

    Messages:
    5,305
    Location:
    Aotearoa New Zealand
    Yep, if they were looking for adulation, they could have had it in spades. Will be interesting to see if, what, when and how subsequent papers will be published.
     
    SNT Gatchaman, Jul 26, 2024
    #802
    rvallee, ukxmrv, Wyva and 7 others like this.
Page 41 of 41

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