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Dianna Cowern, Physics Girl, fundraiser 2024 and other news

Discussion in 'Fundraising' started by Dolphin, Jun 30, 2024.

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  1. Utsikt

    Utsikt Senior Member (Voting Rights)

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    Norway
    She has around the clock care and can avoid PEM. She’s probably also lucky.

    She might have responded to some treatments, but that’s just speculation and n=1.

    Suffering and effort isn’t enough for most people, you need to be in the right circumstances as well.
     
    Utsikt, Jan 25, 2025
    #41
    ukxmrv, wingate, RedFox and 7 others like this.
  2. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Standing up for the first time in 2 years is still a long way from remission. It could simply be natural recovery.
     
    Snow Leopard, Jan 25, 2025
    #42
    ukxmrv, wingate, alktipping and 11 others like this.
  3. poetinsf

    poetinsf Senior Member (Voting Rights)

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    Western US
    I'm impressed with her progress. I didn't see sluggishness in her motion or lethargy in her expression, and she's in good humor. Best wishes for her.

    [edit: deleted/edited "diagnostic" portions]
     
    Last edited: Jan 26, 2025
    poetinsf, Jan 26, 2025
    #43
    Sean, RedFox, CorAnd and 2 others like this.
  4. Trish

    Trish Moderator Staff Member

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    Edit: Responding to an edited post

    We should be wary of diagnosing someone's state of health on how they look on a short video clip. Many of us can look well when very ill. Think of how many of us are disbelieved by colleagues, clinicians, friends, even family we live with on the grounds that we don't look sick. No way should we assume someone is 'just deconditioned' or 'recovered'.

    I'm pleased for her she's made some improvement.
     
    Last edited: Jan 26, 2025
    Trish, Jan 26, 2025
    #44
    ahimsa, Sean, wingate and 13 others like this.
  5. poetinsf

    poetinsf Senior Member (Voting Rights)

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    Noted. I was impressed on her progress, but I can see it being diagnosis. The point taken.
     
    poetinsf, Jan 26, 2025
    #45
    EndME, bobbler, RedFox and 5 others like this.
  6. RedFox

    RedFox Senior Member (Voting Rights)

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    1,312
    Location:
    Pennsylvania
    I feel quite sad for her, seeing the awful state she was in last year (and is still in). I'm glad to see she's getting a little better. We should also be grateful of the amount of energy she's expended to remain in the public eye as an activist through all of it.
     
    RedFox, Jan 26, 2025
    #46
    Sean, CorAnd, Snow Leopard and 9 others like this.
  7. Utsikt

    Utsikt Senior Member (Voting Rights)

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    I just pray and hope that she doesn’t become one of the «I know how to recover from ME/CFS» people if she ends up being one of the lucky ones. It can happen to the best.
     
    Utsikt, Jan 27, 2025
    #47
    Sean, RedFox, CorAnd and 6 others like this.
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