'Distressing' unexplained symptoms that affect one in four people, NHS warns

Sly Saint

Sly Saint

Senior Member (Voting Rights)
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The NHS describes these as “medically unexplained symptoms” - something around one in four people visit their GP for. These can be especially “distressing” and “difficult” due to the fact you don’t know what is going on with your body, the health body warns.

“Many people have persistent physical symptoms, such as dizziness or pain, that don't appear to be caused by a medical condition,” the NHS explains. “They are sometimes known as medically unexplained symptoms when they last for more than a few weeks, but doctors can't find a problem with the body that may be the cause.

“This doesn't mean the symptoms are faked or "all in the head" – they're real and can affect your ability to function properly. Not understanding the cause can make them even more distressing and difficult to cope with.”

The NHS adds: “The GP should also investigate whether you might have an associated problem, such as depression or anxiety. Physical symptoms can cause depression and anxiety, and these can in turn make the physical symptoms worse, creating a vicious circle.”

However, in some cases, your symptoms could be caused by a “poorly understood” syndrome. Examples of these include:

  • Chronic fatigue syndrome (CFS) – also known as ME
  • Irritable bowel syndrome (IBS)
  • Fibromyalgia (pain all over the body)
  • Functional neurological disorders (FNDs) – symptoms thought to be caused by nervous system problems rather than a physical condition.
The NHS states “The fact that doctors are unable to find a condition causing these symptoms isn't unusual in medicine, and it doesn't mean that nothing can be done to help you.”
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'Distressing' unexplained symptoms that affect one in four people, NHS warns
 
Sly Saint said:
'Distressing' unexplained symptoms that affect one in four people, NHS warns

“This doesn't mean the symptoms are faked or "all in the head" – they're real and can affect your ability to function properly. Not understanding the cause can make them even more distressing and difficult to cope with.”

The NHS adds: “The GP should also investigate whether you might have an associated problem, such as depression or anxiety. Physical symptoms can cause depression and anxiety, and these can in turn make the physical symptoms worse, creating a vicious circle.”
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What a give-away. Lets get real physical. Now I can clearly see the loop in the panacea theory. One or some real physical symptoms CAN cause depression and anxiety. So any physical symptom in any physical condition can warrant rehab modification of thought and behaviour. Send us all yr sick and disabled, yr weak, yr wounded and yr poor. Don't do the physical

The NHS is out being very frank and bolshy, evidenced by "Chronic fatigue syndrome (CFS) – also known as ME". I am glad to see my suspicion substantiated, in view of the murky creep observed for some months now

“The fact that doctors are unable to find a condition causing these symptoms isn't unusual in medicine, and it doesn't mean that nothing can be done to help you.”

HA HA, we are back to Do No Tests Send Them To Us Instead. That worn, torn, patched and tattered garb. Still garbling. See what happens when the top notch of the NHS gets to play Simon Says. Teeny bit out of date

The record got past "An Anomalous National Guideline NG 206 for the ME / CFS Delivery Plan (UK)". The record got stuck on No Need To Investigate (for a diagnosis by exclusion of similar conditions). Just Send Them to Us There Are Things We Do To Help You (Instead)

Time for Mr Streeting and Mr Gwynne to have a little word with the top-notch who muddled and screwed up their Delivery Plans Big-Time, by Very Bad Uncontrollable Compulsive-Obsessive-Addictive Habit. Who is in charge of the NHS Talking Therapy rollout ? Mr Streeting. Did he not say so himself ? Who can exempt the NHS Delivery Plan for ME / CFS so ? Mr Streeting. The Man. Himself

Furthermore the NHS sub-sub-contracted IAPT program, now TT program, did give us all to understand that MUS means an exxagerated sensation that is a normal bodily sensation or a minor pathology of no concern or a normal stress response so thats that. It is not ME / CFS. Is it even "CFS also known as ME" to the NHS-referred IBS Network too ? They sing from the same hymn sheet all this time. Yes victimised, preacher man, by your cronies, kith and clan
 
Kitty said:
That looks like a nice one for today's Contradiction Corner

"symptoms thought to be caused by nervous system problems rather than a physical condition"
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Mmmm so the nervous system is not physical and its not behaving its disorderly its plasticky and must melt-down to be re-entrained, we know this because evidential rehab worked on melted stroke victims too, so melt then modify

Baby driver is in the seat needs carriage everywhere the grownups can go, the whole world is an extension of baby-driver's arms, legs, hands and feet, for evermore, thats what the world is for and this includes every body's nervous system, naturally, mind over matter is evidentially rehabilitative in all cases efficacious, the saviour of, the human race, just sign the next contract and be done
 
:)

'thought' - also idea, concept, belief, notion

What is none of those things, is the fact that for the last 14 years patients with formerly known as CFS/ME now known as ME/CFS have been banned from blood donation. The other diagnoses in those lists provided in the article aren't. I fact checked just now... Eligibility - Search - NHS Give Blood In fact, the blood donation service doesn't even recognize FND. Hardly condusive to fully informed consent for anything now is it?

  • Chronic fatigue syndrome (CFS) – also known as ME
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Interesting way of writing it.

Did the NHS forget about the two "occupational aspects of the management of chronic fatigue syndrome/myalgic encephalomyelitis: evidence-based guidance for:

  • healthcare professionals
  • employers"
NHSPlus published in May 2008?
 
Maat said:
:)

'thought' - also idea, concept, belief, notion

What is none of those things, is the fact that for the last 14 years patients with formerly known as CFS/ME now known as ME/CFS have been banned from blood donation. The other diagnoses in those lists provided in the article aren't. I fact checked just now... Eligibility - Search - NHS Give Blood In fact, the blood donation service doesn't even recognize FND. Hardly condusive to fully informed consent for anything now is it?



Interesting way of writing it.

Did the NHS forget about the two "occupational aspects of the management of chronic fatigue syndrome/myalgic encephalomyelitis: evidence-based guidance for:

  • healthcare professionals
  • employers"
NHSPlus published in May 2008?
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It’s an interesting point when you think of bps trying to now re diagnose and in future diagnose those who would be me/cfs, normally the more severe, with ‘other terms’ like FND or whatnot if those aren’t on the exclusion list

I have always found the blood donation one the insightful bit at the end of it. I see right thru most of the people who claim to believe things along the lines of I could try harder (even those who saw I had a harder tougher job situation where I worked harder than them - whilst had me and they didn’t because after all when you get sick you get less choice and are less able to stand up for yourself because you can’t lose your job and they know you can’t commute elsewhere) …

watch them if they think they might catch it. And blood donation is one of those no one is kidding anyone. And deep down most people know that at least a certain proportion with me are devastatingly ill , so it’s not a little risk or something you just live with or get past. When it becomes a risk to them.

it’s like people trying to rewrite history with the Uk covid lockdown: I was already shielding a week before, absolutely gotten my head round being shut in gif three months whilst it was let rip and I shielded.

It was definitely the well people on the other side who stomped their feet as to insisting on lockdown, not the ill people :laugh: no matter how much they might have tried to shape shift claiming it was ‘fir us’ it was them all elbowing each other out of the way to not have to be the few of the healthy ones being the skeleton staff

they all called me during that week so I know! Then months on when they want to party they all pretended it was the disabled locking them in, when we didn’t say a word either way.

I found it doubly hypocritical because despite already having me/cfs I’d been the one in the workplace who had done whatever shift his no one else out their hand up or who’d been sent round big exhibitions or schools during swine flu. So I knew full well who the ones were who ducked for the sidelines and let others do it and the lies they told to pretend that wasn’t what they were doing… busy that night were they, had some other consideration etc.

So yeah when it’s peoples own health on the line and they might catch it then it shows up truly as just a difference between what’s good for goose rather than gander.

on a side note though it’s a very important concern given we’ve just had the blood scandal inquiry that you’d have thought would mean they’d be alive to making sure name changes to an illness didn’t just mean previous safety precautions git forgotten
 
Maat said:
" Chronic fatigue syndrome (CFS) – also known as ME "
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Interesting way of writing it
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here come the parrots: " CFS - also known as ME "

Its been propagated for some time but now its being standardised from the top IF the new Government holds to the agreement

" CFS " did lift and hijack the statistics and profile reserved for ME / CFS (see below)

" CFS " also claims that IBS includes all the systemic impacts too

Statistics, profiling, and claims, all approved and endorsed by an NHS which did not dare say so itself, until now.

Until now it just signposted to another parrot since Feb 2021, see below:

This NHS page (linked and cited below) was referring IBS cases to The IBS Network (aka The Gut Trust aka Gut Reaction) since:

Page last reviewed: 24 February 2021
Next review due: 24 February 2024
Snapshots taken today 11.1.25

As far as I can tell The Network has long laid claim to whatever proportion of the 250,000 ME / CFS cases have gut problems (including the upper tract). So what proportion is that ? Who can estimate the proportion of gut problems amongst the ME / CFS community ? Because the parrots do insist its all IBS and all that entails

To estimate a proportion, could someone poll the community here for " yes or no " in case of any diagnosed or undiagnosed gut problems with ME / CFS that could be claimed as an IBS, or are an IBS, or may be an IBS?

The Network also stakes claim to all the devastating systemic impact of its Members' devastating gut problems

IBS Network Charity Report said:
IBS Network Report & Financial Statements for the year ended 31st January 2024

2024 Account Filed

This Network is in a consortium launching a Primary Care Early Diagnostic Pathway for Lower GI Conditions

This Network overspent, was losing money, could not increase Membership, got a small Govt grant and was led to expect to get lots more Members out of that Diagnostic Pathway. It can provide Members for research etc. It relies totally upon unpaid clinical volunteers doing VERY many unpaid hours to run its Advisory Support Group for Members (not increasing). Its been getting IBS cases referred from local and national NHS websites at least since Feb 202.

Its "unpaid Advisory Support Team are specialist healthcare professionals and complementary therapists around the UK also raising public awareness through all social media as directed by the Core Team"
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Well that explains the IBS creep I found throughout the dietician network. Its hard assiduous work surviving reality when you can help a tiny niche market but want a big expansion into other markets you can't help, see how such things are organised, one could start a political party with such devotion and then run the country. It happens

NHS (UK) said:
NHS (UK) < Health A to Z < Irritable bowel syndrome (IBS)

What happens if you're diagnosed with IBS ?

The IBS network has more information on IBS
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IBS Network said:
Is This IBS ?
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IBS Network said:
People with IBS often have experienced symptoms in many other parts of the body.

IBS overlaps with other unexplained illnesses

1. Chronic Fatigue Syndrome

2. Fibromyalgia

3. Indigestion (Functional Dyspepsia)

Chronic fatigue syndrome (CFS) causes persistent fatigue (exhaustion) that affects everyday life and doesn't go away with sleep or rest.

CFS is also known as ME, which stands for myalgic encephalomyelitis. There's some debate over the correct term to use for the condition, but we will refer to the condition as CFS.

CFS is a serious condition that can cause long-term illness and disability, but many people – particularly children and young people – improve over time.

It's estimated around 250,000 people in the UK have CFS

Anyone can get the condition, although it's more common in women than men. It usually develops when people are in their early 20s to mid-40s. Children can also be affected, usually between the ages of 13 and 15.
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IBS Network Self-Care Program said:
We are the national charity supporting people living with irritable bowel syndrome, or IBS.

Our mission is to provide support, accurate and up-to-date information and advice, working alongside specialist healthcare professionals to help facilitate self-management.

The IBS Network was established in 1991 as the national charity supporting people with irritable bowel syndrome.

Over the years the charity has grown and developed – changing names, (for a short time known as The Gut Trust), location and staff. However, our core values have remained the same; to provide information, support, and advice for people living with IBS.

Here at The IBS Network, we know how devastating and confusing IBS can be. The letters and emails you send us, tell us how much you need reliable advice and information.

This is why we have created our fully comprehensive IBS Self-Care Programme, which provides you with comprehensive information about the nature, causes, and management of IBS.

Parts are available to everybody but for additional and more in-depth information, join The IBS Network.

This gives you the information you will need to understand and manage your IBS in collaboration with your health care professionals.

People living with IBS often feel isolated and alone, embarrassed to seek help or talk to anyone about their condition. Many of our members have had several tough years living with IBS gradually starting to understand their triggers and learning how to manage their symptoms.

By sharing their stories here, they hope to help others who have just been diagnosed with IBS or those who are plucking up the confidence to talk to someone about how they are feeling and what they are experiencing.

Although we are unable to answer your specific medication/medical questions in the office,

as we are not medically trained,

we will be able to listen and signpost you to further help and support.

You are not alone.
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The Network said:
Medical
Doctors are under more pressure than ever before. Their priority is to diagnose and treat life-threatening diseases. They may not have the time to be able to help you understand the intricacies of your IBS, but they should screen out life-threatening illnesses that may cause the same symptoms

{ HA HA HA NOT ANYMORE ACCORDING TO THE NHS TODAY }

Therapies
IBS is a illness of the whole person, not just the body, but the mind and how you feel about yourself. Therefore therapies that have a holistic approach, such as psychological therapies, touch therapies, nutritional and herbal therapies and homeopathy can be of great benefit to people with IBS. It is most likely the healing approach that counts
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You can stop cackling out loud now

No no no no grizzlies ... see next post
 
Bobbler talking about ducking and diving my GP took early retirement as soon as covid showed up .I do not blame him since he was diabetic with weight problems when visiting him previously i worried more about his health than mine .The fact he had at least two M E patients on his lists was probably the warning bell for him to take early retirement .
 
alktipping said:
Bobbler talking about ducking and diving my GP took early retirement as soon as covid showed up .I do not blame him since he was diabetic with weight problems when visiting him previously i worried more about his health than mine .The fact he had at least two M E patients on his lists was probably the warning bell for him to take early retirement .
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Then he was so lucky to have met you
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NICE 2021, and everything else, may well have not happened for all the difference it is making in the NHS.

They just don't care, and are clearly going to hand us straight back to the psychosomatic club. It could not be more obvious. :grumpy:
 
Sean said:
NICE 2021, and everything else, may well have not happened for all the difference it is making in the NHS.

They just don't care, and are clearly going to hand us straight back to the psychosomatic club. It could not be more obvious. :grumpy:
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It looks very much like these niche services are not so popular as they claim to be, and never will be. But also, whatever the national ambitions being courted by some elitist mavericks, the mainstream isnt happy with the national rollout of talking therapy and rehab programs, either. How could it be with that kind of drop-out rate, however the books are doctored, its just an inflated claim to be helping many more than ever found it helpful. This is well-known by the many more encountered and their communities.

For 4 years the conversion clinics ran their scaled-up nationally networked remotely delivered covid rehabs and got a bad reputation in a jiffy with a much bigger audience than we could muster or be. They scaled up their training programs and job opportunities and clunky clinics but they still have only the one stale repertoire and can never adapt nor evolve. Its not ingenuity its cunning ande its stepped out into the light, blinking, entranced by the scale of its ambition, its pissed off senior people behind the scenes and it gotitself a very public face

On such a scaled up industrial scale there are not that many happy bunnies working the road to perdition. We can't all be sonic-teutonic followers of fashion waltzing around the conversion clinics. Its one thing to hive off in ME / CFS Clinics, its another to present to the nation
 
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The history I leant from the Long Covid SOS thread, has a timeline, starting last year in April with the encouraging top-down NHS directive to run a pilot with the British Society of Physiotherapy and Rehab Medicine (BSPRM) under contract, I suppose to see how many out-of work patients it could screen and get up and running again

So in October an NHS grant got them a subcontracted "BSPRM sub-group" launched: so their more interested Members are now operating this sub-contract as the Clinicians Post Covid Society with their October contract to produce the Royal College of GPs’ new Long Covid Lite leaflet by December in time for the national rollout claiming to get the NHS back to work for starters

Then all rehabbed success can get back to work and then I guess they expect DWP to step in with sanctions as piloted by the Lightning process up north, for a spot more enforcement

Well look what happened to the thickened executive of the Royal College of Physicians. They fell behind the times so the Members had a regime change pronto before the deaths mounted higher

This disastrous national rollout simply cannot work. Also its not just us being handed over, its all the unemployed, and all the chronically sick and disabled under the extant Act (The Chronically Sick and Disabled Act - UK). I expect the GPs might want their regime changed too

I am fairly sure the reason for dropping the medical term : “chronic” : was to try and forget the Act

Long Term Conditions is gobbledygook. This is a populace mind you that turned out peacefully to out-number a mob that was trying to call out the Army and set fires
 
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I think the Advertising Standards authority might take a look at advertisements by The Network seeking Members and Pathways posing the false claim that CFS is ME just to obtain money's by deception so its a fraudulent advertisement falsifed to claim also the profile, and statistics, and systemic devastation of M.E / CFS just to to pad out their shrinking Membership. The intent is plain

There are many more such hawking false claims advertising charities, businessess and clinics, its gone further than the ASA would allow
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Sean said:
NICE 2021, and everything else, may well have not happened for all the difference it is making in the NHS.

They just don't care, and are clearly going to hand us straight back to the psychosomatic club. It could not be more obvious. :grumpy:
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Everything I have seen so far over the years supports the fact that health care systems and the medical profession never admit to a mistake. Straight up never. They may say words to that effect but never actually act on their meaning. Everything is covered up, mostly in secret behind closed doors, and if things do get out it's treated as a PR issue, then covered up.

They do welcome an actual good solution to replace that mistake if one can be produced, in the process never accepting the premise that they got anything wrong and that people shouldn't dwell on the past and move on, but they never agree to do the work that can accomplish that because doing so would be a soft admission that they don't have things entirely under control.

Exactly like bad politicians. Because even middling politicians are capable of that. But we can't even have that standard.

I have never seen any evidence otherwise. It's a system built on not learning from mistakes because it can't admit to them.
 
rvallee said:
The nervous system, famously an etherical phantasmagoric spirituocorporalist essence entirely independent from the physical body.
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The nervous system with a dose of mission creep, famously taking the physical body unto itself into its very own etherical phantasmagoric spirituocorporalist essence, keeping body and soul together, entirely independent from the physical world which is misbehaving again as are all the people
 
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