Donation to Tuller/research as respond to our critics

I am sure many of you saw Michael Sharpe's latest tweet about Tuller's crowdfunding. That spurred a lot of response and, even better, donations to the crowdfunding.

Could this actually be a resource for us? Can we turn badmouthing and negative characteristics of ME-patients and biomedical research into something positive?

The Norwegian Refugee Council recently created the hashtag #Trollmelding (Trollmessage). If you see something infuriating on social media on racism, negative characteristics of refugees etc then as a response you can donate to the Refugee Council and use their hashtag.

Perhaps we could do something similar?

I suggest a hashtag something along the line of #PWMEStandWithScience and a donation to Tuller or biomedical research as response whenever our biopsychosocial friends present their opinions and criticises biomedical research and investigative journalism.

What do you think? Could it be worth a try?

 

Sounds a good idea. However I think a shorter hashtag would be good.

#pwme4science

Actually best would be #Science4ME LOL

 

Agree. Short hashtag is good. #Science4ME is a good suggestion, but perhaps a bit confusing if it refers to two different things.

#PwME&Science perhaps?

 

Yes - #Science4ME wasn't actually a suggestion, just an observation.

I'm not sure if "&" works as a hashtag

 

Just tested over on Twitter & doesn't work

 

I agree, a perfect hashtag is usually short, gets the point across and explains itself (and prompts viewers to identify with it)

 

Thanks. Didn't know that.

 

#TullerScience

#ExploreMEscience

#RealSCIENCEforME

 

Yes! Also I want it to be something non aggressive. Simply a support for research, which anyone can agree with.

 

Love the brainstorming! keep them coming! I am completely out of further ideas myself right now, but will keep pondering.

 

#IsupportTULLER ?? (After asking David's okay of course)

 

That is good but something that could be used for any ME/CFS post is probably more likely to catch on, #RealSCIENCEforME or #PWMEStandWithScience are great generic hashtags

 

I like it.
I was thinking that IF we can start a campaign, perhaps it can live on also after Tuller's crowdfunding is over? So perhaps the hashtag should be more general?

 

Yes me too.

 

That is good but it conjures up people donating their bodies to science (maybe i'm just overtired)
How about #Science4pwME

 

I like it as well.

I hope more suggestions will come though. Perhaps we can give this a couple of days and see how the thread and suggestions develop, have a poll among our favourite hashtags and then launch?

 

This one is good too, good for dealing with psychobabblers

 

#donate4MEscience

 

I think #realSCIENCEforME is a good one