Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences) Cuesta et al.

This is a nursing qualitative research paper from Spain. Paywalled.

Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences

Abstract

Fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity can be considered contested illnesses.

The questioning of the status of these conditions as real diseases reduces feelings of legitimacy in those affected.

The purpose of this study was to analyze subjectivity construction processes in people with these diseases.

A qualitative exploratory study was conducted from the perspective of hermeneutic phenomenology and ethnosociology.

We used life stories for compiling data (13 informants were interviewed face-to-face), and sociological discourse analysis was developed.

Three main categories were identified: (a) self and grieving; (b) images and practices relating to fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity; and (c) relationships with health professionals.

This study shows that daily experiences of people living with these diseases are marked by stigmatization processes.

The ultimate purpose of nursing care for people with these conditions should be to reduce their vulnerability and exclusion.

https://journals.sagepub.com/doi/ab...&rfr_id=ori:rid:crossref.org&journalCode=cnra

 

Oh good, so they can make up what they want then. I hope they made up something nice.

 

Sorry, but there are a few words there, in particular "hermeneutic", which set my alarm bells ringing:

https://www.s4me.info/threads/wish-me-luck-everybody.341/page-2#post-5567

 

So very sorry, I have added the link to my original post and here for convenience
https://journals.sagepub.com/doi/ab...&rfr_id=ori:rid:crossref.org&journalCode=cnra

 

sci-hub link