From chronic fatigue to long COVID Article in Royal College of Nursing magazine The title and intro do the usual "chronic fatigue" thing, but really CFS. https://www.rcn.org.uk/magazines/opinion/2021/september/long-covid-19-experience-chronic-fatigue
This is interesting in how it makes the point of the "fatigue" services being "acceptable", even being portrayed positively, despite being useless. And how it creates a cycle of hopium, despite many tries, despite the next try being exactly the same as the prior ones, that person still holds on to the hope that the next "rehabilitation" will work this time. How even the lack of progress is framed as slow progress, because of the damn hopium. But more than anything it shows those services are utterly useless. Services the colleges are going on a scorched earth campaign to preserve. Despite being useless, acknowledged even by people who have nothing but praise to them, despite acknowledging they are useless. But it also could have been written on day 1 of this whole affair. That the lack of progress only bothers those it fails is a major systemic issue, health care services are perfectly happy providing useless services that lead nowhere, a fact even medical professionals living this reality struggle to accept.
https://twitter.com/user/status/1479532793222864900 I wonder if the RCN are aware that the NHS websites have not been properly updated since the new ME/CFS guidelines? (and that there is a continuing effort to suppress the contents). https://www.s4me.info/threads/after...ionals-website-changes-etc.23885/#post-400744 It is incomprehensible that a senior nurse in the NHS let alone one with a CFS diagnosis should be so poorly informed and that her employers be complicit in this failure.
