Great video interview "From Fit Nurse To ME Warrior With Ashanti Daniel" by Valentine Ewudo: https://thinkalpha.net/fit-nurse-to-me-warrior-ashanti-daniel/
Thank you for posting this video @Joh. It's one of the best interviews and explanations of the experience of this illness that I've seen. Ashanti is sitting up and engaged throughout the interview, surely she paid heavily for it days afterwards. She reiterates time and again that "fatigue" is a misnomer and does not cover the depth of this illness. Her background as a mother, NICU nurse, and fitness buff give her a lot of credibility in battling the pre-conceived assumptions some people have about people with ME.
Oh dear, her daughter has set up a GoFundMe so that she can go to Optimum Health Institute for alternative treatment. Emotional detoxification Learn how to feel, process, and understand the important role your emotions play in creating and maintaining health and well-being. Discover the healing power of forgiveness. Mental detoxification Learn how beliefs, thoughts, and emotions can make you sick. Learn how to cancel, reframe, and replace negative thoughts with positive ones to facilitate the healing process. Develop a mindfulness practice for maintaining a positive attitude – gratitude, affirmations, visualization, journaling, and living in the present.
Yikes, someone should tell her it isn't the promised land. In fairness, for someone in a country with zero acknowledgement of ME, looking at the OHI's website might feel like it's exactly that. That website is odd. The guy running it wants to help you "become the alpha in your life that you are destined to be". And I notice 5 comments underneath the article, all of which appear to be the work of bots.
She already was there. She's only diagnosed for a year and went there very early on. She collapsed afterwards and apparently since than is worse than before, needing a wheelchair (says one of the go fund me entries). Her latest treatment was IVIG. The guy running it who did the interview is also a nurse (and livecoach or something), I guess the nurse thing is why she reached out to him.
