1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Henrick Vogt: "intense negativity spread by individuals/CFS groups/researchers" partly to blame for family's suicide

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Andy, Jan 21, 2018.

Tags:
Page 4 of 4
  1. Stuart

    Stuart Established Member (Voting Rights)

    Messages:
    48
    Not harmful? Look at his original post, on that thread an LP victim mentions who he was referred to, and that most of the patients probably just parroted the 'I am better' required statement (that is what LP is, just saying that over and over). However, one of those 'better' patients up and died shortly after. The instructor's spin? "He was an inspiration... It improved the quality of the last phase of his life." FFS lady, you killed him!
     
    Stuart, Feb 10, 2018
    #61
    Lisa108, Inara, Jan and 7 others like this.
  2. Adrian

    Adrian Administrator Staff Member

    Messages:
    6,486
    Location:
    UK
    A big concern with these approaches is what happens if people are misdiagnosed or have other acute issues that need to be dealt with - telling people to ignore symptoms mean they get ignored and not investigated.
     
    Adrian, Feb 11, 2018
    #62
    MEMarge, Hutan, Dolphin and 15 others like this.
  3. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    10,280
    And coming soon to a MUS clinic near you.....

    ETA: by you, I mean us all.
     
    Invisible Woman, Feb 11, 2018
    #63
    Stuart, Inara, Indigophoton and 4 others like this.
  4. Adrian

    Adrian Administrator Staff Member

    Messages:
    6,486
    Location:
    UK
    Its very concerning but I think some of the attitudes are already institutionalized. A friend had fatigue in the early 90s and kept being dismissed by doctors it turned out to be something serious, life threatening and acute which one GP eventually picked up on and finally got treated.

    I think medicine or alternative medicine that encourages people to say they are better and ignore symptoms will only make that worse.
     
    Adrian, Feb 11, 2018
    #64
    Hutan, Solstice, TiredSam and 11 others like this.
  5. JohnTheJack

    JohnTheJack Moderator Staff Member

    Messages:
    4,369
    News has come today that the family died by their own hands, and that this was related to the daughters' diagnoses of ME.

    Warning     The news report contains distressing details.
    https://www.aftonbladet.se/nyheter/krim/a/8wdBJ1/polisen-sa-dog-familjen-i-bjarred

    An 'In memory' thread will be set up so members can express their sadness and condolences.


    ETA: edited to avoid saying too much about details, as they are upsetting.
     
    Last edited: Dec 11, 2018
    JohnTheJack, Dec 11, 2018
    #65
    Hutan, andypants, Lisa108 and 8 others like this.
  6. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    2,335
    Do not seem to have an English translation?

    ETA: am worse brain fogged than ever. What am I missing?
     
    Last edited: Dec 11, 2018
    Binkie4, Dec 11, 2018
    #66
    MEMarge likes this.
  7. inox

    inox Senior Member (Voting Rights)

    Messages:
    539
    Location:
    Norway
    You're not missing anything, there seems to be something about the links to Aftonbladet that makes them unable to auto-translate.


    It's about the family that was found dead this january. The police have now finnished their investigations and held a press conference about the findings. So that's mainly what is new. They confirm what is already known, it seemes to be a joined descision by the parents based on both daughters ME-diagnosis.

    There are more details (about their deaths), but I'm not comfortable with translating/summarizing those.
     
    inox, Dec 11, 2018
    #67
    Hutan, Lisa108, JohnTheJack and 7 others like this.
  8. Trish

    Trish Moderator Staff Member

    Messages:
    52,218
    Location:
    UK
    The In memory thread is here. It includes a link to an article from the Swedish ME Association.
     
    Trish, Dec 11, 2018
    #68
    Sean, Hutan, Lisa108 and 9 others like this.
  9. JohnTheJack

    JohnTheJack Moderator Staff Member

    Messages:
    4,369
    When I open the page in Chrome, I'm asked if I want it translated.
     
    JohnTheJack, Dec 11, 2018
    #69
    MEMarge, Invisible Woman, Binkie4 and 1 other person like this.
  10. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    2,335
    Thanks @JohnTheJack . I am usually in safari but when I moved to chrome, I was offered a translation.

    It is a very, very sad story.
     
    Binkie4, Dec 11, 2018
    #70
    MEMarge, Invisible Woman and Trish like this.
Page 4 of 4

Share This Page