https://www.youcanknowthings.com/how-one-neuroscientist-solved-the-mystery-of-his-own-long-covid-2/ Interesting article, sadly few have access to this level of testing Ritixumab being used
Yeah, it’s the difference between research and treatment too I think. Most of us have access to and interactions with health services, which are really treatment services. Investigations performed are just to find which predefined path we are put on, not to understand something. If there isn’t a predefined path then you’re pretty much out of luck. The mention of CIDP is interesting, and something I came across only recently in the context of others who had significant reactions to the covid vaccines.
CIDP is not Long Covid and has established diagnosis and treatment, although looking at stories on reddit /GBS, patients frequently seem to have delayed or misdiagnoses.
