How does cognitive behaviour therapy reduce fatigue in patients with chronic fatigue syndrome? The role of physical activity, 2010, Wiborg, Knoop +

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Hutan, Apr 15, 2025.

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  1. Evergreen

    Evergreen Senior Member (Voting Rights)

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    Well yes, that strategy was necessary to achieve the main aim of the trial:
    I can't quite believe they wrote that in their paper, but they did.
     
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  2. Utsikt

    Utsikt Senior Member (Voting Rights)

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    I’ve actually seen that quite often. The aim is to prove the efficacy, not test it. They might believe those are the same thing, for all I know.
     
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  3. Yann04

    Yann04 Senior Member (Voting Rights)

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    Yep when you look at how studies like PACE were conducted. It’s glaringly obvious that PACE was an attempt to produce “evidence” that GET/CBT works, not an attempt to test if GET/CBT works.
     
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  4. dave30th

    dave30th Senior Member (Voting Rights)

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    yes, that's quite telling.
     
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  5. dave30th

    dave30th Senior Member (Voting Rights)

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    yes, it was conducted to prove that what they were already doing throughout the 90s and what they were already advising the NHS and insurance companies was "evidence-based"
     
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  6. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    Was it Wessely or White that used the analogy of an ocean liner heading to a preordained port when describing PACE, presumably missing the point that the purpose of science is not to realise a predefined conclusion?
     
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  7. Yann04

    Yann04 Senior Member (Voting Rights)

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    I think Wessely wrote something about choppy seas but glorious voyage or something like that when describing PACE
     
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  8. Evergreen

    Evergreen Senior Member (Voting Rights)

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    I was looking for that quote today! I thought it was Geraghty in the Journal of Health Psychology but I can't find it so maybe it was someone else...
     
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  9. Evergreen

    Evergreen Senior Member (Voting Rights)

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    Here we go:
    https://www.nationalelfservice.net/...syndrome-choppy-seas-but-a-prosperous-voyage/

    So that's where Wessely said it, and Geraghty mentioned the metaphor, but I can't remember who pointed out that you don't decide before the trial where it should end up and make corrections so it gets there.
     
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  10. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    Thank you @Evergreen, even worse than I sort of remembered.
     
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  11. Utsikt

    Utsikt Senior Member (Voting Rights)

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    I wonder if they even realise that sailing a ship from one predetermined port to another doesn’t create any new information at all? It’s such a terrible analogy.
     
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  12. Evergreen

    Evergreen Senior Member (Voting Rights)

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    Oh look what Graham (RIP) had to say in a comment under Wessely's blog:
     
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  13. Turtle

    Turtle Senior Member (Voting Rights)

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    Maybe this ship didn't even leave port.
    The captain and his senior crew were just making waves themselves, by feasting, lots of booze, that made them feel seasick.
    The fist that went overboard were the clients, they were not needed anymore.
    Just bossing them around had made the hotshots feel powerful.
    Do this, don't do that and when you don't do your homework, you'll stay sick.
    But now it's party time.

    But the clients were and are still drowning even at the port that was never reached.
     
  14. NelliePledge

    NelliePledge Moderator Staff Member

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    Genius
     
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  15. rvallee

    rvallee Senior Member (Voting Rights)

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    Since they already "know" that it works, then it really is.

    Of course this is the opposite of how science works, but since it's widely accepted I guess that science is still vibes-based.
     
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  16. rvallee

    rvallee Senior Member (Voting Rights)

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    Wessely. In the same advertorial, he presented himself as a neutral observer with no connection to the cruise ship. Despite having written the manual, having been involved in the process, and that this was basically his baby. I really doubt that he missed the point. I think he was actually boasting of how easy it is to get away with this, how they don't even need to pretend, because even when they get caught, nothing happens anyway.

    Well, sometimes they get awarded for it and promoted far above their merit. Hard to expect any other kind of behavior given this. It's like when companies get caught doing something illegal, and get fined a pittance far smaller than the net profit they made from it. It may as well be a "Go for it!" certificate. Why would they bother following the law when it's more profitable to ignore it?
     
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