Mithriel
Senior Member (Voting Rights)
In the days before CFS, the disease called ME was believed by patients and medical people who treated patients and researched the disease to be caused by a viral infection, which could have been subclinical, was neurological and where there was an abnormal response to exercise. This was not just doing a lot and feeling bad for a while the way PEM is often described but being unable to walk after mental exertion or becoming lost in a familiar area because you walked too far. Also the tiny stops lasting a few seconds or a couple of minutes never seem to be mentioned as part of PEM.
These doctors worked during epidemics and it was the same thing as the way people with long covid know it is connected to covid because it happened after they had covid or deduce it was covid they had because it matches long covid. These epidemics were enteroviral so it may be that is why neurological signs were so common.
What we now call ME may be caused by different viruses but it seems very unlikely there is no viral trigger. It may be there are more than one disease involved, made more likely by the confusion spread (deliberately) by renaming and redefining ME to CFS.
My own personal view is that the Workwell results showing we slip into relying on anaerobic respiration for normal living instead of just using it as an emergency system explains a lot of what I have always had and is a better description of the energy problems in ME rare, if not unique.
These doctors worked during epidemics and it was the same thing as the way people with long covid know it is connected to covid because it happened after they had covid or deduce it was covid they had because it matches long covid. These epidemics were enteroviral so it may be that is why neurological signs were so common.
What we now call ME may be caused by different viruses but it seems very unlikely there is no viral trigger. It may be there are more than one disease involved, made more likely by the confusion spread (deliberately) by renaming and redefining ME to CFS.
My own personal view is that the Workwell results showing we slip into relying on anaerobic respiration for normal living instead of just using it as an emergency system explains a lot of what I have always had and is a better description of the energy problems in ME rare, if not unique.