Is the 'fatigue'/'tiredness' experienced by pwME a form of Dynapenia?

Discussion in 'Post-Exertional malaise and fatigue' started by Sly Saint, Oct 6, 2018.

  1. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I don't really like the idea that I might have dynapenia - sounds very peculiar - but I probably do. I did it hard to lift a bag of cement these days.

    But I don't think this has anything to do with ME/CFS.
    I also don't think it is a terribly good word. Muscle weakness is probably better.
     
  2. Ravn

    Ravn Senior Member (Voting Rights)

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    Interesting that most of the posts here centre on a lack of energy (however you want to define energy) when one of the most frequently heard comments is "it's much more than just fatigue"

    In other threads the discussion often veers towards equating ME-fatigue with feeling ill or feeling poisoned or feeling viral, in other words there's an addition of some mighty unpleasant sensations, on top of feeling wiped out, and all tangled up into one impossible to separate knot

    I suspect this is what was intended with the term malaise (not talking about PEM here but constantly present malaise) except they forgot that for most people malaise is inextricably associated with Victorian 'nerves' and fainting spells, or with some vague sense of unease. Not quite the same...

    The most useful term I've found to date to make the point that ME-fatigue isn't mere tiredness or normal expected fatigue (think new parents type fatigue) is 'pathological fatigue' but that still doesn't describe what I'm feeling

    Edit: oops, brain fog with word-finding problems struck again, changed pathogenic to pathological, I guess at least I found half the right word
     
    Last edited: Jan 14, 2025
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  3. Kitty

    Kitty Senior Member (Voting Rights)

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    Yeah, I think so. I'm in a minority of people who don't really mind it as long as it's used as a medical term. I'd never choose to use it outside that context.

    If I had a list of great words to describe how I experience the constantly present malaise, fatigue wouldn't make the top five. It might not even be in the top 10 some days.

    I'd love it if it were just fatigue, I could cope with that to some extent. It's all the other stuff, and the best way I can describe that is being really unwell.
     
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