IV IG: Intravenous immunoglobulin infusions

[deleder2k]

Does anyone know if any private clinic in Europe is offering IVIG to patients with ME?

 

[ryanc97]

If it is indeed AAB from LLPCs, then these IVIG/SCIG should give temp improvements as they compete with AABs at binding sites, so lessening the harmful effects of the AABs.

 

[OrganicChilli]

We probably should wait for the blinded placebo-controlled studies before offering it to everyone. I’ve seen patient reports of bad side-effects elsewhere.

Do you remember where you saw that by any chance?

 

[Utsikt]

Do you remember where you saw that by any chance?

I can’t remember exactly, but I know most of the searching was done on reddit and it was probably for long covid. It was before I knew of S4 and PR, so reddit was the most accessible.

When I googled «IVIG long covid negative reddit» this came up at the top, I’m assuming you’ll be able to find more:

 

[Yann04]

I can’t remember exactly, but I know most of the searching was done on reddit and it was probably for long covid. It was before I knew of S4 and PR, so reddit was the most accessible.

When I googled «IVIG long covid negative reddit» this came up at the top, I’m assuming you’ll be able to find more:

Just noting as for that sub that the moderator basically bans anyone who doesn’t follow their mind body ideology.

So definitely not discounting that persons experience, just that that might affect what gets commented and posted in that comm.

(ie. I’m pretty sure an IVIG success story would be removed by the mod)

 

[Utsikt]

Just noting as for that sub that the moderator basically bans anyone who doesn’t follow their mind body ideology.

So definitely not discounting that persons experience, just that that might affect what gets commented and posted in that comm.

(ie. I’m pretty sure an IVIG success story would be removed by the mod)

Absolutely! I wasn’t looking for balance in this case, just for negative anecdotes so I thought it would do.

 

[sebastianLC]

Does anyone know if any private clinic in Europe is offering IVIG to patients with ME?

In Bad Aibling (Germany) Dr. Beate Jäger is offering IVIG for ME in the private clinic St. Georg.

 

[Braganca]

She’s the one offering apherisis to desperate long Covid patients..

 

[sebastianLC]

She’s the one offering apherisis to desperate long Covid patients..

Exactly, and I was one of them. After 6 HELP aphereses last summer I quit since it did nothing for me. Now I am looking for opportunities to get my hands on IVIG. Would like to avoid Bad Aibling for that, however, since I would like to do this with an Austrian immunologist who is very experienced with IVIG in ME and LC.