Japan Me Association: "Accolades for our Documentary Film"

Mieko Shinohara who had this letter published in the Lancet in reply to the PACE Trial, features in the trailer.

https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60686-7/fulltext

CORRESPONDENCE| VOLUME 377, ISSUE 9780, P1833-1834, MAY 28, 2011
The PACE trial in chronic fatigue syndrome

The PACE trial in chronic fatigue syndrome
Published:May 17, 2011DOI:https://doi.org/10.1016/S0140-6736(11)60686-7

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A very controversial paper was published on March 5, 2011, about treatments for chronic fatigue syndrome (CFS).
1
I have suffered from this disease for more than 20 years and have been nearly bedridden for the past few years. I hope that the study will be beneficial for patients with CFS.
Surprisingly, patients who participated in the study were young, and their symptoms were mild to moderate. Furthermore, their disease duration was short, and they were still in the process of adjusting to the fact that they had an illness whose cause is not known. Probably, the participants learned coping skills through self-help strategies.
2
Cognitive behaviour therapy and graded exercise therapy can be effective for many chronic diseases other than CFS. As this study showed, it is reasonable that cognitive behaviour therapy and graded exercise therapy are effective for CFS. However, whether these treatments will be effective for patients with severe CFS who need medical support remains unknown. I am concerned that this study might lead to further misunderstanding of this disease.
In Japan, much research on fatigue in general has been done, but more severely ill patients have been totally overlooked. We need more research where those patients are involved. We are sincerely hoping that the researchers will focus on the biological roots of CFS, so that eventually a cure can be found.
I declare that I have no conflicts of interest.

References
  1. 1.
    • White PD
    • Goldsmith KA
    • Johnson AL
    • on behalf of the PACE trial management group
    Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial.
    Lancet. 2011; 377: 823-836
    View in Article
  2. 2.
    • Carruthers BM
    • van de Sande MI
    Myalgic encephalomyelitis/chronic fatigue syndrome: a clinical case definition and guidelines for medical practitioners.
    http://sacfs.asn.au/download/consensus_overview_me_cfs.pdf
    (accessed May 6, 2011).
    View in Article
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