Millions of Americans and others around the world suffer from an extremely debilitating illness called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which is a poorly understood chronic disease characterized by long-lasting and profound fatigue, unrefreshing sleep, cognitive dysfunction, and pain. Very little is known about the biological basis of this disease, making it extremely difficult to diagnose and treat.
We are very excited to start this blog with the goal of chronicling the research at The Jackson Laboratory Collaborative Research Center (JAX CRC) for ME/CFS, the other two NIH funded ME/CFS CRCs, and ongoing research around the world. We intend to provide links and information on progress made by the CRC, as well as by other researchers in the ME/CFS community. We are hopeful that this will enable us to better engage the ME/CFS community and receive feedback from patients and advocacy groups in our efforts to find solutions for this disease.
