La Trobe University ME/CFS research programme

Dolphin

Senior Member (Voting Rights)
Daniel Missailidis, PhD on X:

Did you know that you can donate directly to our ME/CFS research labs at La Trobe University?

Every dollar supports the costs of our research directly and literally buys us more time to continue studying the cell biology of ME/CFS.

#research #MECFS

https://www.latrobe.edu.au/giving/chronicfatigue

Would be good if the above link said ME rather than chronic fatigue. (Have just replied to his Tweet asking for this)

The headline on the linked page is:
Support Myalgic Encephalomyelitis/ Chronic Fatigue research

Though the blurb says:
"With donors like you, we can find solutions to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) - a debilitating and little understood condition affecting up to 250,000 people in Australia, 25 per cent of whom are housebound or bedbound.

I thought This Uni was one of the better ones in AUS.
 
Last edited by a moderator:
Daniel Missailidis, PhD on X:

Did you know that you can donate directly to our ME/CFS research labs at La Trobe University?

Every dollar supports the costs of our research directly and literally buys us more time to continue studying the cell biology of ME/CFS.

#research #MECFS

https://www.latrobe.edu.au/giving/chronicfatigue
That website needs a little work

Usually I keep my donations within NZ, partly out of local loyalty and partly because the tax credit allows me to donate more in total. But sometimes I make an exception like here where I wanted to show my appreciation for this team's, especially @DMissa's active engagement on the forum

But La Trobe don't make it easy. It's bad enough that you have to get past the "chronicfatigue" in the website address and ignore the lack of information on the page itself, plus the "Chronic Fatigue research" blooper hasn't been fixed yet either

But then it turns out it's impossible to make donations from NZ unless you happen to live in one of the larger cities. For some reason there are obligatory drop-down menus for suburb and city but with a very limited selection of choices. It was mildly amusing to contemplate how the very independently minded residents of a number of towns would feel if they knew they'd been demoted to suburb of who knows what distant city. As for my address, there was no way to enter it at all

Out of interest, I also checked Denmark and France and they have text entry fields rather than drop-down menus, so they don't have the same problem (should anyone from there wish to donate)

Maybe you can let the relevant IT people at La Trobe know @DMissa? Not that missing out on my modest donation would make any real difference but if that glitch is more widespread affecting other donation pages or other countries than the few I checked it may well be worth their while to get it fixed
 

Funding groundbreaking chronic fatigue research​


La Trobe researcher Dr Sarah Annesley has secured funding from ME Research UK to support a pioneering study into Chronic Fatigue Syndrome (CFS).
Dr Annesley, from the School of Agriculture, Biomedicine and Environment, will investigate whether molecules that regulate gene expression and energy production, known as microRNAs, are dysregulated in post-viral CFS.

The study will focus on platelets which, beyond their role in blood clotting, are increasingly recognised as key regulators of immune function.

“This funding marks an exciting step forward in our efforts to understand the complex biology of CFS,” Dr Sarah Annesley said.

“We predict that abnormal platelet activation may contribute to immune system dysfunction in CFS, and this pilot study will help us explore that possibility.”

“Importantly, our research is co-designed with individuals who have lived experience of CFS, ensuring it remains grounded in the realities of those affected.”

Working with Dr Annesley are Dr Daniel Missailidis, Dr Jacqueline Orian, Dr Nina Riddell, Dr Lesley Cheng and Dr Melanie Murphy.

La Trobe Deputy Vice-Chancellor Research and Innovation Professor Chris Pakes welcomed the outcome.

“This support from ME Research UK reflects the calibre of research being conducted at La Trobe and our commitment to tackling complex health challenges,” Professor Pakes said.

“This condition affects millions globally, and we are proud to contribute to the search for better diagnostics and treatments.”

The research aims to uncover potential biomarkers and deepen scientific understanding of CFS’s underlying mechanisms, paving the way for future therapeutic advances.

In 2023, Dr Annesley was a recipient of La Trobe’s Tracey Banivanua Mar Fellowship.

 
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