Legitimizing myalgic encephalomyelitis/chronic fatigue syndrome: indications of change over a decade, 2020, Friedberg

Andy · Feb 6, 2020

This commentary identifies recent scientific and clinical milestones that appear to have increased legitimization of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). These milestones include government-funded reports recognizing the seriousness of ME/CFS, new initiatives for biomedical research sponsored by the US National Institutes of Health, official endorsement of the ME/CFS name, publication of practitioner primers, and the launch of a new peer-review fatigue journal. These positive developments are tempered by ongoing illness challenges including patient stigma, absence of diagnostic markers, a lack of established treatments, and a dearth of researchers and knowledgeable, interested clinicians.
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Paywall, https://www.tandfonline.com/doi/abs/10.1080/21641846.2020.1718292
Sci hub, https://sci-hub.se/10.1080/21641846.2020.1718292

ETA: Sci hub link.

Andy · Feb 6, 2020

Now available via Sci hub, https://sci-hub.se/10.1080/21641846.2020.1718292

Andy · Feb 6, 2020

Sly Saint said: ↑

"new peer-review fatigue journal"; any idea what this refers to?
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At a guess it's the journal that the article is published by "Fatigue: Biomedicine, Health & Behavior", https://www.tandfonline.com/toc/rftg20/current, which is "Published on behalf of the IACFS/ME".

Tom Kindlon · Feb 12, 2020

https://twitter.com/user/status/1227654708518670336

Tom Kindlon · Feb 12, 2020

"By contrast, appropriately submitted research papers on ME/CFS are often not even sent out for peer review by medical journal editors (Leonard A. Jason, PhD, personal communication, November 6, 2019)."
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https://twitter.com/user/status/1227667099289518082

My guess is the publication of the recent important prevalence study of ME/CFS in children in a relatively obscure journal was connected to this issue.
https://link.springer.com/article/10.1007/s10566-019-09543-3

Tom Kindlon · Feb 12, 2020

ME/CFS research is significantly challenged by critical barriers and gaps, including lack of knowledge of biological mechanisms, limited clinical information about the illness, a shortage of clinicians and researchers, and insufficient funding
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https://twitter.com/user/status/1227730344000008193

Tom Kindlon · Feb 12, 2020

https://twitter.com/user/status/1227731434984628224

Tom Kindlon · Feb 13, 2020

"These advances in illness recognition must be considered in light of significant challenges to achieving mainstream legitimacy and the continuing difficulties that patients experience in finding support, appropriate medical care, and effective treatments."
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https://twitter.com/user/status/1227995433051578368

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Legitimizing myalgic encephalomyelitis/chronic fatigue syndrome: indications of change over a decade, 2020, Friedberg

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Legitimizing myalgic encephalomyelitis/chronic fatigue syndrome: indications of change over a decade, 2020, Friedberg

Andy Committee Member

Andy Committee Member

Andy Committee Member

Tom Kindlon Senior Member (Voting Rights)

Tom Kindlon Senior Member (Voting Rights)

Tom Kindlon Senior Member (Voting Rights)

Tom Kindlon Senior Member (Voting Rights)

Tom Kindlon Senior Member (Voting Rights)

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