Lightning Process study in Norway - Given Ethics Approval February 2022

Thanks for posting this. It is annoying not having the language skills to be able to really check things out.

 

Does the Tweet explain where this info comes from? Whas it obtained legally (e.g through a freedom of information request) or by hacking or a leak?

 

"Here is an illustration of a model that illustrate how biological, psychological and social factors can contribute to the different symptoms one can experience following a viral infection:"
she presents this as though it is fact, as opposed to an unproven hypothesis.

 

Will anyone following this issue ever believe that Flottorp had not read the protocol? This wording to avoid liability is just so ironic when trying to meddle with the process through closed channels. Also: Befring is possibly the biggest name in health law in Norway time being. She actively communicated the dissent of the minority in the NEM through the media - and now this! Things are moving forward on a weirdly tortuous path

 

the two 'poster girls' in the UK of being 'cured' by the LP (Martine McCutcheon and Esther Rantzens daughter) have repeatedly been featured in various articles over the last few years as having ME.

Both are mentioned on the LP website:

https://lightningprocess.com/esther-rantzen-i-am-now-confident-the-lightning-process-has-worked/

https://www.dailymail.co.uk/tvshowb...ating-daughter-amid-coronavirus-pandemic.html

(I haven't looked up the MM ones as she has her own thread).

 

Lots of corruption at Cochrane it seems. We need answers for this.

This is obviously false, this did not stop after a "solid factual review", in fact the update is allegedly happening. So they seem to actually believe their own lies. But it also raises the question of whether it is actually happening, since we have seen absolutely nothing out of it.

But this all seems expected after blatant corruption has been normalized. Once this kind of behavior is seen as acceptable, that the ends justify the means, the whole process has become invalid. Once corruption and lying and cheating are normalized, that's all you're going to ever get. This is also clearly personal and completely unprofessional.

Except that it technically is professional behavior, in the sense of the joke that however a champion behaves is always the behavior of a champion.

 

This person obviously cannot lead a medical research institution. Deeply, deeply unserious.

A small number of positive anecdotes: must be considered true and whole.
A very large number of negative anecdotes: meh

There it is, complete cherry-picking in a nutshell. I think this is why all substantial discussion is pointless: they genuinely don't care about any substantial matters, about whether evidence even matters at all. They believe in it, and that's why they're doing this.

This is complete perversion and ideological corruption of a scientific institution. She also clearly doesn't understand the issues with conflicts of interest, and seems to understand even less that we obviously extend all the same concerns with any and all studies and research, whatever their nature. She thinks she has a gotcha with this, when in truth we demand far higher standards of evidence than even she does.

This reads exactly like conspiracy politics. Seriously. I'm into this stuff and it's the exact same, people who simply believe they and they alone have the answer and that they must naturally wield power over others if they have to. The absolute worst way to do medicine.

 

I think "mission" is a good translation, perhaps "social mission" or "societal responsibility" could work too.

Thank you for bringing these news to the forum @Midnattsol
I'm angry too, but not very surprised and kind of glad that this has been brought out in the open. My guess it there's lots more where this comes from.

 

Absolutely. I worry that some patients underestimate the extent to which communication like this shapes the way medicine works.

 

Trial By Error: Top Lightning Process Proponent Privately Lobbied for Approval of Norway’s LP Study

"Dr Signe Flottorp is a promoter of the Lightning Process for ME/CFS as well as the research director at the Norwegian Institute of Public Health. That’s a scary combination! Dr Flottorp, a general practitioner, is also a fervent member of the Scandinavian arm of the CBT/GET ideological brigades. She and two colleagues recently wrote an ill-informed opinion piece promoting GET and CBT called “Facts and myths about ME” for Aftenposten, a major news organization. Aftenposten also published my rebuttal–with an appealing photo!–in which I declared their unfounded arguments to be “tullprat.” (“Nonsense,” for non-Norwegians.)

It recently became known that Dr Flottorp engaged in some private lobbying last April on behalf of a controversial proposed LP study being reviewed by NEM–a national research ethics body for medicine and health sciences. In 2021, NEM rejected a previous version of the proposed LP study, although the nine-person decision-making committee has since had a partial turnover of membership. The committee approved the new version of the LP study earlier this year."

https://www.virology.ws/2022/12/07/...ely-lobbied-for-approval-of-norways-lp-study/