Looking for a particular Sean O'Neill writing

[Saz94]

Hi, @Jonathan Edwards told me that Sean O'Neill has written somewhere about not believing in his daughter's ME until it was too late and bitterly regretting it now. I thought it would be helpful for my parents to read this specific writing. Does anyone know where to find it?

(Please do not send me links to more generic O'Neill articles about his daughter's ME. I am looking specifically for the one I described above, and I dont have the energy to sift through other articles.)

JE mentioned that @dave30th might know where to find it?

 

[Chandelier]

Hope that helps:

Chronic ME sufferer knew she would starve to death, mother tells inquest

Maeve Boothby-O’Neill was being treated at the Royal Devon and Exeter Hospital before she died at home

www.the-independent.com

“For many years I myself questioned whether ME was a physical condition. I believed the orthodox views expressed in books and articles about ME.


“My scepticism undoubtedly fractured my relationship with Maeve, to my lasting regret and pain.

“It is too late for Maeve but there are signs of attitudes changing.”

Mr O’Neill, a journalist with The Times, added: “I have little faith in the ability of institutions to learn lessons.

“Experience has taught me they tend to guard reputations, individual and corporate, rather than embarking on reform.”

 

[Saz94]

Thanks. Hoping for something a bit more in depth than that, about how not understanding ME causes harm to the patient... and without the quotes from the hospital etc contradicting what's being said.

 

[Jonathan Edwards]

I doubt there is anything in more depth than lasting regret and pain @Saz94.
I have seen a bit more detail on timelines but I don't think they add anything.
I don't see how anyone can contradict what O-Neill said, either.

 

[Saz94]

I doubt there is anything in more depth than lasting regret and pain @Saz94.
I have seen a bit more detail on timelines but I don't think they add anything.
I don't see how anyone can contradict what O-Neill said, either.

By contradicting, I meant the bit in the article where the hospital and the GP say "well actually this didn't happen the way that they say it did". Casts doubt on the reliability of everything M's parents say. My parents are the type to always believe the institution over individuals.

 

[Jonathan Edwards]

By contradicting, I meant the bit in the article where the hospital and the GP say "well actually this didn't happen the way that they say it did".

The medical professionals were responsible for the death, however they claim it happened. I cannot speak for everyone but anyone who thinks that Maeve was just imagining that she was dying is beyond my ken. I think the evidence has to be taken as it is. Maybe there are some people who think it was all Maeve's fault. I am not sure what that even means.

 

[dave30th]

JE mentioned that @dave30th might know where to find it?

Thanks. Hoping for something a bit more in depth than that, about how not understanding ME causes harm to the patient... and without the quotes from the hospital etc contradicting what's being said.

I think that's the most I've seen him say or write publicly about that.