Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, 2018, van Campen, Rowe & Visser

Abstract only at moment, https://www.frontiersin.org/articles/10.3389/fped.2018.00349/abstract

 

So the 35 seconds I managed to stand in the GPs surgery were not a good reason for the cardiologist to say confidently that I didn't have POTS? Well, there's a shock!

 

Pity this doesn't address NMH (another form of OI), which requires a considerably longer test.

 

Same happened to me, but in a cardiologist's office, who dismissed the published criteria that I mentioned. Took me five years to get my OI diagnosed via a longer test.

 

Well, that is quite interesting. Thanks @Andy. I would also be interested in the comparison of poor man's tilt table test with tilt table test (or does that exist?).

 

Coincides with their paper
Passive standing tests for the office diagnosis of postural tachycardia syndrome: New methodological considerations (Peter Rowe team 2018) discussed in this thread.

I was recently turned down for an assessment for POTS from my local hospital and am considering trying the NASA 10 minutes lean test myself at home. https://batemanhornecenter.org/wp-content/uploads/2016/09/NASA-Lean-Test-Instructions.pdf

Seems very few doctors here in Norway have heard about POTS. The first patient who got diagnosed was in 2015. I got the impression that my local hospital turns down referrals because they believe this is just a fad among people having read about it on internet.

 

There is a paper by S R Raj comparing TTT and standing tests but I can't get it to upload to site.

 

I did the poor mans ttt at home and qualified for POTS in the first minute of standing. I’m now pushing for a referral to Riksen, where they apparently have a tilt table, but of course GP haven’t heard of POTS or OI so doesn’t see the point.

 

Full paper now available at https://www.frontiersin.org/articles/10.3389/fped.2018.00349/full