Maeve Boothby O'Neill - articles about her life, death and inquest

In my view we need to copy the quack’s media campaign. Only their side is being broadcasted everywhere. That’s why the population at large (most drs included) have no idea of the true nature of ME.

 

Oh, no, they have moved on from that. Haven't you heard? They're now disorders of gut-brain interaction. Or whatever. For now anyway. Next month, who knows? Maybe upset or nervous tummies will be back in fashion.

 

Their strategy only works when you have the balance of power. They have the totality of power. We can't copy any of what they're doing, and this is why it's so easy for them, they can just laze their way into parroting the same nonsense and still get showered in money and praise.

 

Yes, I did hear.

 

we do need to coordinate better though rather than have lots of people saying all sorts of disparate things 'because any awareness is good' not realising that causing noise actually reduces awareness and increases distance to getting there, unless things are set up to juxtapose (ie if people say slightly different things because they dovetail then that dovetail needs to be elucidated so it doesn't look like it contradicts or everyone 'just disagrees') which to the laypersons appear to contradict each other like we cant decide vs the bps refined set of lines and stories.