October 19, 2025
sarah boothby
@swastrosarah.bsky.social
Before Maeve became too unwell to eat I was working up a research project with Dr Siobhan O’Dwyer which we recruited Dr Nina Muirhead to join. We wrote a rapid response to the BMJ's reporting on government’s Plan for ME. They asked us to rewrite it as a letter so
www.bmj.com
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www.bmj.com
Unpaid carers are the missing piece in treatment guidelines and research priorities for ME/CFS
it could be given doi
O'Dwyer and I were promised funding from NIHR by Lyn Romeo in 2022, but O’Dwyer was overloaded with getting promoted to a new post in Birmingham and finally pulled out at the last minute in March this year.
I am now actively looking for another academic to lead on this.
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Dr Keith Geraghty is interested but we really need a Professor, ideally in Public Health, too. NIHR is UK based, and the NHS so idiosyncratic it would have to be led from these islands. If you know anyone suitable, please put me in touch.
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justice4me.uk
