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Mast Cell Activation Syndrome (MCAS) - discussion thread

Discussion in 'Immune: Autoimmune and Mast Cell Disorders' started by Dakota15, Aug 26, 2020.

  1. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Milk doesn't contain gluten.

    The study by Rowe is about milk protein but it looks to be extremely badly done. It is difficult to know how accurate the report is but apparently there is no test for milk protein intolerance so it was just diagnosed on hunch. People diagnosed on hunch were better after stopping milk. This is the sort of pseudoresearh that we spend most of our time trying to bring to a halt - PACE, SMILE, whatever. We cannot complain about bias in BPS studies unless we are fully aware just how much it affects all studies.
     
    Last edited: Mar 31, 2021
  2. Suffolkres

    Suffolkres Senior Member (Voting Rights)

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    Agreed, Typo - I meant to quote milk ( lactose) and gluten. Apologies!
     
    Last edited: Mar 31, 2021
  3. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    But lactose is something different again - not milk protein as in the Rowe study.
    We need some proper biology here.
     
  4. Aslaug

    Aslaug Moderator Staff Member

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    I haven't read the study, but elimination diets are the gold standard for food sensitivities. If symptoms reappear upon testing (preferably blinded) that is seen as proof of the sensitivity - and then you test again later to see if it has gone away. The symptoms listed could have many other causes though, and I would not jump to "milk allergy" if a patient told me about them (except in the case of infants).
     
  5. dave30th

    dave30th Senior Member (Voting Rights)

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    which study by Rowe about food proteins? Is there a link to that I missed?
     
    Invisible Woman likes this.
  6. Aslaug

    Aslaug Moderator Staff Member

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