1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 26th May 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice
  4. Forum upgrade planned for Sat/Sun June 7th/8th - Forum will be unavailable for around 1 day. More details.
    Dismiss Notice

ME/CFS and Long Covid charities/ organisations - International and National

Discussion in 'Organisations relevant to ME/CFS and Long Covid' started by Hutan, Sep 10, 2023.

Tags:
Page 2 of 2
  1. Hutan

    Hutan Moderator Staff Member

    Messages:
    32,670
    Location:
    Aotearoa New Zealand
    Added, thanks
     
    Hutan, Sep 15, 2023
    #21
    Ash and alktipping like this.
  2. longcovidsos

    longcovidsos New Member

    Messages:
    1
    Could you please include our charity on your page - we are involved in the UK Covid Inquiry and are one of the leading Long Covid charities in the UK

    https://www.longcovidsos.org/

    Thanks!
     
    longcovidsos, Oct 26, 2023
    #22
    bobbler, EzzieD, Ash and 12 others like this.
  3. Hutan

    Hutan Moderator Staff Member

    Messages:
    32,670
    Location:
    Aotearoa New Zealand
    Welcome to the forum @Long Covid SOS! It's great to have you here. Certainly, adding you now. Done
     
    Hutan, Oct 26, 2023
    #23
    bobbler, EzzieD, Ash and 11 others like this.
  4. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights) Staff Member

    Messages:
    6,838
    Location:
    Aotearoa New Zealand
    SNT Gatchaman, Oct 26, 2023
    #24
    Solstice, EzzieD, Ash and 7 others like this.
  5. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,713
    Please add LocalME as we have been approached by S4ME Committee and are signing Cochrane petition.

    We are;
    'LocalME'- comprises 52 local support and advocacy groups across the UK as well as outside UK. https://groups.io/g/LocalME

    --------------------------------------------------
    Just to clarify..

    We are not
    ME Local Network (MELN) highlighted on AfME website.
     
    Last edited: Oct 27, 2023
    Suffolkres, Oct 27, 2023
    #25
    alktipping, bobbler, Solstice and 4 others like this.
  6. Hutan

    Hutan Moderator Staff Member

    Messages:
    32,670
    Location:
    Aotearoa New Zealand
    Thank you @Suffolkres, great news. I'll add LocalME to both our UK national and regional organisations list, and we'll also add LocalME to the open letter supporter list.

    How great that 52 small organisations are so well organised, and that the UK has the 52 organisations.
     
    Hutan, Oct 27, 2023
    #26
    alktipping, Ash, Solstice and 2 others like this.
  7. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,713
    Helen B will be sending you our statement on behalf of those on LocalME who have responded for Cochrane letter. Thanks
     
    Suffolkres, Oct 27, 2023
    #27
    Ash, Solstice, alktipping and 2 others like this.
  8. Hutan

    Hutan Moderator Staff Member

    Messages:
    32,670
    Location:
    Aotearoa New Zealand
    The name of the South African organisation has been updated on the basis of this
    as reported on the /news from South Africa thread.
     
    Hutan, Nov 12, 2023
    #28
    alktipping, SNT Gatchaman, Solstice and 3 others like this.
  9. Ash

    Ash Senior Member (Voting Rights)

    Messages:
    1,884
    Location:
    UK
    I love it!
     
    Ash, Nov 15, 2023
    #29
    alktipping, Solstice, Hutan and 1 other person like this.
  10. Hutan

    Hutan Moderator Staff Member

    Messages:
    32,670
    Location:
    Aotearoa New Zealand
    Hutan, May 27, 2024
    #30
    alktipping, Solstice, Yann04 and 2 others like this.
Page 2 of 2

Share This Page