ME/CFS Australia (SA) Inc Co-Signs International Open Letter

Barry · Apr 12, 2018

http://sacfs.asn.au/news/2018/04/04_09_mecfs_australia_sa_cosigns_international_open_letter.htm

Therefore, on the basis of the evidence to date, ME/CFS Australia (SA), does not support the CBT and GET treatments described and implemented in the UK PACE trial as suitable treatments for ME/CFS, and has concerns about the possibility that they could cause harm.

However, the original paper claiming that GET and CBT are useful treatments for ME/CFS still stands in the journal Psychological Medicine, and has not been retracted by the editors. This gives the impression to new readers of the article that it is scientifically sound and its conclusions are still valid.

There is now an international open letter to the editors of Psychological Medicine asking for the 2013 PACE paper to be retracted from the journal. It currently has 141 signatories from individual scientists and other experts, and from ME/CFS organisations, including us. We have added the signature of our association to the list as we believe it to be important that such a paper, which does not meet the generally accepted standards of research methodology, and thus draws unsupported conclusions about the treatment of ME/CFS, should not be part of the medical literature on ME/CFS. This is particularly important given that these treatments may well cause harm.

The full text of the open letter, and the signatories to date, can be seen at:

http://www.virology.ws/2017/03/23/an-open-letter-to-psychological-medicine-again/
Click to expand...

Barry · Apr 12, 2018

I imagine you are already aware of this @dave30th.

Hutan · Apr 12, 2018

S4ME isn't a signatory to the letter; Phoenix Rising is.

ETA: Oh, maybe we aren't a legal entity yet?

Binkie4 · Apr 12, 2018

What about AfME? I seem to remember a problem last year or have I misremembered this? Can anyone amplify? Clare Ogden?

MEA, IIME and 25% group have signed.

adambeyoncelowe · Apr 12, 2018

AfME weren't initially invited to sign and then didn't want to sign it late, IIRC. Convenient, you might think . . .

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ME/CFS Australia (SA) Inc Co-Signs International Open Letter

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ME/CFS Australia (SA) Inc Co-Signs International Open Letter

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