ME/CFS classed as 'Acquired Neurodivergence' by some DWP Access To Work Coaching Companies

Lou B Lou

Lou B Lou

Senior Member (Voting Rights)
ME/CFS as 'Acquired Neurodivergence', according to coaching companies. ME/CFS appears to be food for coaching companies, who find even more ways to include ME/CFS in whatever the coaching specialty is that they are selling.


'the Canary has discovered a number of AtW [DWP Access to Work] coaching providers specialising in support for neurodivergent employees are promoting their services for people living with ME.

The Canary has identified at least three peddling this:

  • Creased Puddle
  • Genius Within
  • No Drama Llamas


' a webpage Genius Within created in September 2020 features a page on ‘Chronic neurological conditions’ where it classifies multiple sclerosis, “chronic fatigue syndrome”, and long Covid as a ‘neurotype’ called ‘acquired neurodivergence’.'



'A 2017 report that the British Psychological Society (BPS) launched at the All Party Parliamentary Group (APPG) on Psychology categorised ME amid a group of neurological conditions it described as “acquired neurodiversity”*.

The report’s core thrust was largely about adaptations and interventions employers could put into place to support neurodivergent employees.


But the interventions involved some problematic suggestions for employees with ME, including:

  • Formal coaching for “executive functions, communication skills, stress management and understanding own abilities.”
  • Vocational rehabilitation and Individual Placement and Support (IPS).'



Genius Within’s founder and CEO Dr Nancy Doyle co-authored the [British Psychological Society] report. And now, her organisation is among the handful pushing this ‘acquired neurodivergence’ paradigm. The support it offers to employees with ME is coaching for:

  • Stress
  • Time management
  • Organisation
  • Memory
  • Listening and taking notes
  • Verbal communication
So it’s evident Doyle’s approach has little changed since the 2017 BPS report. Because clearly employers simply need to coach the chronic multi-systems dysfunctions out of their employees with ME.'


'The consequences of this are obvious. Because in turn, it means the government’s attack on neurodivergent people not in work will target people with ME too.'


'If the foremost scheme improving workplace accessibility for disabled employees is directing people with ME to organisations that treat their condition in neurodivergent terms, it also doesn’t have to provide the more expensive support workers, job aides, and workplace accommodations that people with ME actually need to re-enter and/or stay in employment.'




'.... Medical adviser to the ME Association Dr Charles Shepherd told the Canary:

The ME Association is aware of a number of people who have some form of neurodivergence as well as having ME/CFS. However, neurodivergent conditions are increasingly being diagnosed – so there are bound to be some people who have both conditions, and there is no research evidence to indicate that the two conditions are linked.

It is not therefore correct to classify ME/CFS as an acquired neurodivergent condition. Incorrect classification of ME/CFS as a neurodivergent disorder could also lead to inappropriate forms of symptom or support management being advised.
Click to expand...



'Overall, ‘acquired neurodivergence’ seems to be the new ‘psychosomatic’ for ME patients.

Where previously, the DWP benefitted from the trivialisation of ME as a mental health condition, now it can weaponise this idea that its neurological symptoms constitute neurodivergence developed from chronic illness.

The consequences of this are obvious. Because in turn, it means the government’s attack on neurodivergent people not in work will target people with ME too.'



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The coaching companies telling the DWP that ME/CFS is 'Acquired Neurodiversity' and providing 'back to work' coaching courses. It's Very Obvious that their coaching criteria Do Not encompass the disabling illness limitations of ME/CFS. PEM is not even anywhere on their radar. These companies, and by extension the DWP which employs these companies, have reclassified ME/CFS as 'difference', Not physical illness which disables and can be fatal.



Genius Within

'Lifelong medical conditions such as multiple sclerosis, chronic fatigue syndrome, long term COVID-19, can result in a spiky profile and impact our ability to work at our best. Executive functions are often affected, impacting processing speed, concentration and attention.'

' Even when our health is not at its best we can maximise and develop skills'

geniuswithin.org

Chronic neurological conditions

Genius Within offer services, including coaching, to support those struggling with Chronic neurological conditions, such as fatigue and long term COVID-19.
geniuswithin.org geniuswithin.org





No Drama Llamas

Live Your Dreams​

'Life is full of opportunities, and it is our job to help you figure out which opportunities to take advantage of in order to live the life you want. When you choose to live a dream, you need a plan to make it come true. Once you have a plan, a coach will help you stick to it and get around any obstacles.'

nodramallamas.org

No Drama Llamas

at work or home
nodramallamas.org nodramallamas.org





The Canary article states:

In a 2021 Returning to Work briefing, Creased Puddle’s CEO Caroline Turner said:

Our expertise lies in developing and supporting neurominorities, yet with COVID-19 we are seeing our services extending to other conditions such as Chronic Fatigue, Fybromyalgia and Depression.
Click to expand...



If this coaching company includes ME/CFS as an 'Acquired Neurodiversity' condition then it has been misinforming Police authorities, Councils, and Housing Associations.


Creased Puddle - Understanding Minds of All Kinds
Provides Workplace Support, Access to Work, and Police, Prisons, Courts

'By understanding Neurodiversity within the Criminal Justice System, we can change lives. Our specialist CJS [Criminal Justice System] team, made up of former CJS professionals, provide support across the sector.'

Neurodiversity Webinars​

'Our fully qualified and experienced training team have delivered 1000’s of hours of Police training across the world ...'

www.creasedpuddle.co.uk

Police Neurodiversity Training - Creased Puddle

Creased Puddle are recognised by CJS leaders as experts in Police Neurodiversity training and how this translates into everyday operational practices.
www.creasedpuddle.co.uk www.creasedpuddle.co.uk
www.creasedpuddle.co.uk

Understanding Minds of All Kinds - Creased Puddle

We provide practical solutions to organisations and individuals who want to increase their knowledge and understanding of Neurodiversity.
www.creasedpuddle.co.uk www.creasedpuddle.co.uk

.
 
Thanks for highlighting this. A bit concerning. But perhaps worth changing the title of the thread to

'ME/CFS classed as 'Acquired Neurodivergence' in some DWP Access to Work materials'​

or something similar, before anyone is confused by this. As far as I know, the main DWP classification for 'CFS' remains under the banner 'Other disorders of the brain'.
 
Me being ADHD? Must have been blocked out by fatigue. Even before ME/CFS I could knit with 2-3 mm needles, whole sweaters. For those not familiar with the hobby, that's a whole lot of stitches. not well suited for ADHD.
I was intelligent before ME/CFS, I've dumbed down an awful lot because of brainfog. As a second chance student, I started studying at uni at 26 and in my final year ME/CFS stopped me from going to the finish. Not superintelligent, just doing the best I could.
No autism, no dyslexia or discalculia.
Find the neurodivergence. It should be somewhere?
Yuk, moneygrabbers and employers willing to pay to get their employees out off sickleave.
 
Controversial take - towards the end of my time working I was following ADHD coaching advice, because my executive functioning, verbal/listening/organisational skills were trash.

I also might have ADHD and was just unable to mask due to being exhausted. Who knows? I would have benefitted from this if I’d been able to access it.

I also would have benefitted from not working, working less, having a supportive employer and colleagues…

It would have only helped to the point where I became too unwell to work.

What occurs to me is the question “can they also coach workers with dementia?” Because I keep (rightly or wrongly) comparing my cognitive issues with dementia. In that I can tell you what something is one minute, then have no memory of it the next. I can have a “good phase” where I function well but many bad times I can’t.

No coaching in the world can train me to function well when I am ill, just as we can’t train regular people to do data input accurately in their sleep nor can we coach dementia patients to remember their own children when they see them.

I understand the concern about this becoming the new type of psychologisation of ME although I think the Canary has been a bit hyperbolic here.
 
MrMagoo said:
What occurs to me is the question “can they also coach workers with dementia?”
Click to expand...
There is a thing called cognitive rehabilitation therapy for dementia. I sure wouldn't call it coaching, in the way I wouldn't call stroke rehabilitation coaching. Of course, it only works in mild cases and there comes a point in disease progression where it no longer works.

I have had memory and attention problems too- like setting an alarm on my phone to take medication and between turning off the alarm and putting the phone down forgetting to take the medication and even forgetting that the alarm rang. At that point, strategies fail, but this is when very exhausted. I've been reading a book lately called Reader, Come Home, written by Maryanne Wolf, a neuroscientist who studies reading. She mentions that short term memory is really very short (I forget how many seconds, of course), and turning off your phone alarm and forgetting that it rang by the time you set it down is in line with the length of short term memory. The book is about the cognitive problems and deficits that happen when we stop reading and become habitues of social media instead, and it feels so much like the deficits in my ME. The neuro people who study reading are the only people I've come across that seem to be describing my problem, and they don't even mean to talk about ME an have probably never heard of it...

I am certainly curious about the neuroscience of ADD and how it compares to our problems, but I'm also certain that I did not have ADD or similar before getting sick. ADD and similar are developmental disorders, so I've got to think there is something different going on in terms of how the brain originally forms and functions that is different from out situation. I've heard neuroscience people describe MECFS as more similar to a TBI and that's how it feels to me- like I've been kicked in the head over and over until I can't think.

I haven't read the paper of course, since I don't have the energy and attention, but it strikes me that any cognitive therapy, like any physical therapy, will only work when applied within the confines of the illness.

I also object to being called neurodivergent. I am straight up brain damaged and I would like that reality acknowleged and for someone to fix it and give me my brain back.
 
More from The Canary.

The 3 Access to Work coaching companies appear to have decided that the cognitive disfunctions that people with ME typically have are "just the same" as people "with ADHD, dyspraxia and autism" that the Coaching company managers, staff or coaches have.

Who do they think they are to presume such a thing? These coaching companies have engaged in pure exploitation of our disease for their own profits.

Clearly putting ME/CFS under a Neurodivergence banner increases the coaching companies' client base to include more people who the DWP would pay the coaching companies to provide Access to Work coaching. 'The coaching seemed to centre round learning “strategies” and “workarounds” for addressing ME’s impact on “executive function”.'



'The Canary approached staff at these organisations as a person with ME, an employee seeking prospective support through the Access to Work scheme.'


'DWP Access to Work providers are pushing controversial psychotherapies to people with ME'




The company 'No Drama Llamas' :

'A senior employee at No Drama Llamas mentioned the concept of “spoons”. She demonstrated some level of knowledge over the ME patients’ need to pace.'

All this sounded somewhat positive, until they detailed how ME:

comes under our neurodiverse umbrella.
Click to expand...

And stated that as an organisation No Drama Llamas -

"know that [ME] it’s not just about the fatigue, it’s about the impact on your working memory and your time management and being organised and your focus and concentration. This is why it comes under the neurodiverse thing, because it impacts your brain in just the same way as me with ADHD and dyspraxia and autism. You’re going to have the same challenges that I have because of the way that your condition affects your cognition and your executive function."




'When workplace adjustments means adjusting you'

Similarly, a Creased Puddle coach explained that the company views ME as “an acquired neurodivergence” :

"when we think about neurodivergence, the conditions people think of [are] Autism, ADHD, dyslexia, tourettes, and these are all conditions that people are born with and will have for the whole of their life. Whereas you weren’t fresh out of the womb with ME, you didn’t have it at all. You’ve developed it over time and you could actually recover."
Click to expand...

Again, coaching seemed to centre round learning “strategies” and “workarounds” for addressing ME’s impact on “executive function”.

'However, the conversation with Creased Puddle also revealed that coaches would apply controversial psychological therapies in sessions involving people with ME.'

The therapies are ACT and NLP.
'ACT assumes that psychological suffering is caused by experiential avoidance of symptoms and hurtful thoughts and feelings.' .... 'to get ‘unhooked’ from unhelpful thoughts.'

NLP 'designed to alter behaviour by reprogramming unconscious patterns of thought'


'The [Creased Puddle] staff member the Canary spoke to confirmed that this was a possible approach coaches might use for clients with ME. When the Canary asked what this might look like for an employee with ME, they told us that:

"It may be something like, for example, you might be telling yourself internally, I’m no good at doing this, this, and this. I never get it right. I always get it wrong. So your coach will kind of challenge the language you’re telling yourself. Because actually, if you’re telling yourself you’re never going to do it, then you’re never going to do it."
Click to expand...


However 'Creased Puddle told the Canary that since December 2025, it has stopped offering its services to people living with ME. According to organisation’s PR consultant, this was following an “internal quality review” '

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Lou B Lou said:
"know that [ME] it’s not just about the fatigue, it’s about the impact on your working memory and your time management and being organised and your focus and concentration. This is why it comes under the neurodiverse thing, because it impacts your brain in just the same way as me with ADHD and dyspraxia and autism. You’re going to have the same challenges that I have because of the way that your condition affects your cognition and your executive function."
Click to expand...

This is so ridiculous it made me laugh out loud.

Neurodiversity, which I have, is a difference in brain development that starts very early in life and is permanent.

Cognitive dysfunction, which I have, is the result of ME/CFS fatigue or exhaustion. Severity varies depending on activity and PEM, and because it's neither a developmental difference nor a brain disease, it's highly likely to improve with an effective treatment.

Unsurprisingly, they do not "impact your brain in just the same way". The only consistent thing they have in common is that they can't be coached out of anybody.
 
It's really awful, but in no way is this worse than the medical stuff put out through official channels and ends up in textbooks and guidelines. It's differently awful and wrong, but it isn't any more wrong than anything the likes of Chalder have been peddling for decades. I doubt they'd actually object either, as their model is flexible enough that anything that 'works' and isn't an actual medical treatment is fine.

One thing that biopsychosocial/psychosomatic ideology has achieved is the combination of being extremely closed off to serious assessment, while being so open-minded about silly stuff that any and all crap is acceptable to it. Basically as long as there's coloring withing the recommended lines, it doesn't matter what it actually shows, and this stuff the companies are pushing is as standard biopsychosocial as any other crap is. It's not as if biopsychosocial/psychosomatic has any actual substance to it, it's more about respecting certain vibes than anything.
 
The British Psychological Society Report 'Psychology at work: Improving wellbeing and productivity in the workplace' (2017) Does include 'Chronic Fatigue Syndrome' under 'Acquired neurodiversity' (on page 52) but does not demonstrate the necessary understanding of ME/CFS as a unique disabling illness. No mention or comprehension of the seriousness of PEM.

One of the points the first Canary article (first of 2 articles) made being that one of the 3 coaching companies with DWP Access to Work contracts and which class ME/CFS as 'Acquired neurodiversity' , the coaching company Genius Within - it's founder and CEO Dr Nancy Doyle also co-authored the British Psychological Society Report (The Report was launched at the All Party Parliamentary Group (APPG) on Psychology).




British Psychological Society's 'Psychology at work: Improving wellbeing and productivity in the workplace' Report
Page 52:

'Acquired neurodiversity (neurological conditions)

This type of neurodiversity comprises neurological injuries and chronic neurological conditions. This includes those such as those resulting from trauma or stroke, which affect up to 5 per cent of Multiple sclerosis, which affects up to 0.2 per cent of people, Parkinson’s disease, which affects up to 0.05 per cent of working population and Chronic Fatigue Syndrome, affecting up to 4 per cent of the general population. This list is not exhaustive. Any change to our brain can result in change to our cognitive ability.

.
Table 4 indicates the most common difficulties, related to work performance.


Table 4:
Strengths and difficulties attributed to acquired neurodiversity in the practitioner and research literature.


Difficulties:
Memory
Concentration, attention and fatigue
Recognising new limitations


Strengths:
Strengths are cognitive areas that are not affected by the injury or condition. These might include long term memory, verbal skills, visual skills and many more, but are determined on a case-by-case basis.'
.

BPS Report
'Psychology at work: Improving wellbeing and productivity in the workplace'


 
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duncan said:
I suspect most clinicians don't give it enough time to think it through. It's transactional.

Researchers are different. Shame on them as an institution.

And screw the lazy-ass clinicians. Rat bastards.
Click to expand...
That's been a major annoyance to me for years now.

Abysmal performance in clinical settings is almost systematically excused on not having enough time, how there's so much pressure to process patients as quickly as possible.

And yet the researchers, who sometimes spend way too much time on some parts, basically never come up with anything better, and in fact it's 'researchers', if the word really applies here, who came up with all the garbage that the clinicians who are pressed with time end up doing pretty much identically.

It's not as if just telling someone "just, uh, exercise, I guess, bit more each week, give it time" has any more or less value than 6 months of face-to-face thrice-weekly CBT and GET nonsense. Time does not seem to add anything. Millions of clinician-hours have been dedicated to Long Covid in the last 6 years, and they haven't come up with a single bit of useful information, and neither have researchers. Not a single damn bit of useful information. Everything they've found and is actually correct was long known for years before LC, and most of it was rejected in favor of the biopsychosocial/psychosomatic pile of cocaine.

Unless quality improves, changes in quantity, up or down, don't even make a difference, and quality appears to be even less negotiable than throwing sustained funding at it.
 
rvallee said:
That's been a major annoyance to me for years now.

Abysmal performance in clinical settings is almost systematically excused on not having enough time, how there's so much pressure to process patients as quickly as possible.

And yet the researchers, who sometimes spend way too much time on some parts, basically never come up with anything better, and in fact it's 'researchers', if the word really applies here, who came up with all the garbage that the clinicians who are pressed with time end up doing pretty much identically.

It's not as if just telling someone "just, uh, exercise, I guess, bit more each week, give it time" has any more or less value than 6 months of face-to-face thrice-weekly CBT and GET nonsense. Time does not seem to add anything. Millions of clinician-hours have been dedicated to Long Covid in the last 6 years, and they haven't come up with a single bit of useful information, and neither have researchers. Not a single damn bit of useful information. Everything they've found and is actually correct was long known for years before LC, and most of it was rejected in favor of the biopsychosocial/psychosomatic pile of cocaine.

Unless quality improves, changes in quantity, up or down, don't even make a difference, and quality appears to be even less negotiable than throwing sustained funding at it.
Click to expand...
I think those running those courses aren’t necessarily either at all. Just at best that ‘coach’ term that means little other than the ‘motivating communication’ type stuff. People who do courses in workplace training (but aren’t experts in the actual topics)

The eg autism specific newer type set-ups might be the good type that has grown up from experienced patient expertise in that condition such as carers but I don’t know as there’s lots of room for those just getting themselves into coaching and picking a loose tangential connection to sell it as ‘specialist’ by being good at following the instructions in the grant applications.

Sadly whilst there ideally should be room for really good stuff from the patients and carers with most experience from different models that would also give careers, voice and acknowledgement to their knowledge I think lots just attract or leave a gap for people who are neither anything in anything eg research, science, medicine or living with the condition. Although I’m sure if you look into them each will have their own page where they describe what makes them think they know etc

It’s theoretically pretty puzzling how someone has pulled off persuading funding that I guess was for target market 1 to now be stretched to include target market 2 and it feels like some chat that’s been had somewhere rather than starting officially - and all from people thinking and claiming good intentions based on some story (because they believe they are helpful people doing wonders). And of course those people forget the coercion their area has and think enthusiastic responses from people aren’t forced by themselves simply by their position (nod and leave on steroids).

But it’s me/cfs and for almost everyone and every dept in these systems we are the group no one can be arsed to even notice us being done wrong or to know what the illness is. We are the dog-end group they think they are very kind to because they use max patronising and assume ‘they know’ because they know what it’s like to be tired and refuse to ever learn any different- it’s a weird phenomenon.

Of course the bit that gets me worst is how people who were worse at everything than us before we got ill then assume we lost all our IQ, tenacity and ability to work around challenges instead of getting huge experience in all from our illness... just by them thinking that and sticking it on people - it never made any logical sense unless you stop assuming good things about those doing it are about what they do to those who are subject to them (which is actually their attitude problem, not ours, but that becomes inconvenient... at best its random enthusiasm from people thinkng what they want to do is great and noone protecting the market it is apparently 'all for/in the name of').

The issue is the lack of respect for us and our illness from nearly everyone and every profession to even correct each person making up their own version of what fatigue is and what ‘people like that’ ‘could do with as a lesson’ as if finger in the wind for 10seconds is enough analysis of whether it is a good thing for all those people (who are exhausted, not demotivated type fatigued) to spend their energy on - which is where the oversighters attitude comes in - I think they partly think 'anything that involves them not being in bed' because of that lurking bigotry. I think the type/area/set-up would get all pretty shocked at being expected to have any methodology or care for whether it harms just as anyone else in the industry sees it as dissing their instinct that ‘what they do is magically helpful and the right thing just cos it’s them’ and as long as it’s around the theme we’d call bigoted it’s accepted by that community who are themselves very bigoted and trained to be small-minded that way.

The idea they look at research more than for ideas of what to do, bung on slides of one liners for applying for a grant seems bs to me. And the readers of that the same.

The idea they could be harmful is just glossed over like the plebs being rude and not knowing their place. Just retort and snort at how suggesting that shows how ridiculous said cohort is for suggest that wasting someone's time could be bad or harmful, nevermind there be such a thing from any well-intended course that is suggesting basic manners/etiquette level things. Don't even entertain the premise, because all these areas we get dumped under aren't bound by the idea of having to measure harm or worth really in that way.

And that of course people need a lesson in time management if their illness stops them from being on time whatever the cause etc

I’d imagine ‘evidenced’ doesn’t mean specific to understanding the conditions the way we’d expect in this area but just broad brush list of skill courses - the usual supply-led menu of ‘time management’ and so on then being adjusted based on stereotypes for conditions , not even on any truth of course for me/cfs in particular

The sad thing is you can imagine the confidence issues some of these things will give ill people instead of taking anything away too. And how this sort of misinformation works against the real issue being sympathized with by employers and given adjustments if it acts as giving the wrong cause for issues and/or suggests all pwme have x behavioural issue.

I don’t know how specific to autism or neurodivergence the stuff was before they diversified further anyway. Or is it just repackaged ‘procrastination’ courses slang student at uni could sign up to. But that would be less coerced/ a slightly different power differential
 
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And unfortunately there's more.
Nancy Doyle (psychologist) Founder/CEO of the DWP coaching company Genius Within and co-author of the British Psychological Society Report 'Psychology at work: Improving wellbeing and productivity in the workplace' .......

Nancy Doyle, appropriates 'Post Exertion Malaise' (Sic) for her theories connecting neurodiversity, Covid, hypermobility, connective tissue and autoimmune conditions, in her Forbes article 2025. This article clearly has a 'we can help them back to work' theme:




Note that this article does not use the name Long Covid, just 'Post Covid' - and does not mention ME/CFS, but Does appropriate 'Post Exertion Malaise' (sic), with a link to the ME Association page on Post Exertional Malaise.


Nancy Doyle conflates PEM with fatigue associated with the conditions listed above, also fatigue associated with neurodiversity. This is damaging to people with ME because it conflates PEM with fatigue in multiple conditions,

She does not appear to have any comprehension that PEM is unique and is Not 'fatigue-with-anything' or 'fatigue-after-exertion'.

Nancy Doyle had to go to the ME Association page on Post Exertional Malaise to find a definition of PEM https://meassociation.org.uk/medical-matters/items/symptoms-post-exertional-malaise-pem/

She also has a touching faith in the Royal Society of Medicine.
.


Forbes article:
.
'Fatigue, Brain Fog And A Racing Heart — What Doctors Are Learning About Post-COVID Neurodivergence'
https://www.forbes.com/.../fatigue-brain-fog--and-a.../

.
Quotes -

'A special meeting at the Royal Society of Medicine (RSM) in London has proposed that neurodivergent people, who are more likely to have hypermobility, connective tissue and autoimmune conditions, have been disproportionately impacted by COVID, and that this is having a significant impact on our ability to go to school and work. The rise in neurodivergence since 2020 that is placing so much strain on education and health services, the tax payer and not forgetting the individuals themselves and their families, is indeed partly due to increased awareness and more accessible diagnostic criteria – as has already been argued.

However, this does not explain why these high rates of diagnosis are accompanied by such vastly increased rates of school absence and inability to work. If neurodivergent people have always existed, why are we only now so unwell that we can’t work?'



'There is emerging, but compelling, evidence that the overlap between neurodivergence, hypermobility syndromes, mast cell activation syndrome, postural orthostatic tachycardia and dysautonomia is not a coincidence, and has a lot to do with COVID.'

The impact of these conditions can be severe on their own, though hard to diagnose and lacking in conclusive biomarkers. They lead to chronic fatigue, serious gastro-intestinal distress, brain fog and concentration difficulties, anxiety and depression. People drop out of the labor force, education and careers are curtailed.

'In a country where productivity has dived since the financial crisis, and the health of the nation has not recovered from COVID, The Royal Society of Medicine are trying to understand the root causes, rather than paper over the end results.

Neurodivergent people are at risk of losing their support from welfare payments due to changes to the benefits system, which could underrate the presence of multiple, mid-level symptoms, even though these all add up to a significant drain.

Whilst political circles are arguing over the extent to which the population is malingering versus “genuinely” ill, this group of physicians have come above the squabbling with a potential lever to tip the system from decline to healing. Following their proposed protocols, we can believe people who say that they can’t cope, treat them and support their recovery to living a full life again.

We are at risk of a lost generation of working age people who cannot understand their fatigue, who are trying their hardest but just cannot get moving, the more they try the harder it is (see: post-exertion malaise)'
End Quote.


.
The supposed 'emerging but compelling evidence' research Nancy Doyle links to in the Forbes article is

'Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain'

The study does not include fatigue at all. Fatigue and 'Post Exertion Malaise' is Nancy Doyle's add-on.
One of the study authors is Jessica Eccles, of the Brighton and Sussex Medical School and Medical Advisor to the Sussex ME/CFS Society

https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2021.786916/full?field=
 
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