ME/CFS Silver Linings—Real and Imagined (video)

[jonathan_h]

Hi all,

I’ve just published a nine-minute-long video in which I rank and discuss supposed ME/CFS silver linings.



I opted for the tier list video format as I find it an entertaining way of exploring a topic.

Curious to hear any thoughts or feedback .

 

[NelliePledge]

Interesting.
Would you be able to do just a simple text list of the boxes and categories so I could comment on what my experience has led me to have a different take on
Cheers

 

[jonathan_h]

Interesting.
Would you be able to do just a simple text list of the boxes and categories so I could comment on what my experience has led me to have a different take on
Cheers

Sure!
Tiers:
Genuinely appreciative

More good than bad

You can keep it

F*ck off

Items:
Loss of identity
Becoming a disease expert
Unlearning prejudices
Time to introspect
Tolerance for discomfort
Appreciate small pleasures
Scientific skepticism
Alone time
Online ME/CFS community
Mental resiliency
Better personal politics
Time off work or school
Reassess what’s important
Rest

 

[Jaybee00]

Cool video

I think alone time ratings will vary a lot depending on the introvert/extrovert level of the person.

Regardless of ME/CFS status, introverts tend to find social interactions/excessive stimulation as energy draining—just like ME/CFS itself.

 

[rainy]

Nice! Your way of speaking is very comfortable to listen to. And the tier format, which I’m used to seeing cover the interests of “the real people” out in the “real world” made me feel a little bit like my life and the thoughts I have on a daily basis can also be casually, unapologetically a real topic that belongs in the world.