ME Public Engagement Event - Norwich, Feb 2020

Andy · Dec 26, 2019

Invest in ME Research and The Quadram Institute are arranging a Public Engagement Event in Norwich on 7th February 2020.

The event will be with Professor Simon Carding and others associated with the research being funded by Invest in ME Research, and particular emphasis will be put on the planned clinical trial being set up at Quadram.
Click to expand...

http://www.investinme.org/IIMER-newslet-20-0101QI.shtml

Sly Saint · Jan 28, 2020

Quadram Institute launches new clinical trial into ME

One of the aims of the public meeting is to understand attitudes towards FMT and its use in the future trial for ME, before the study is submitted for ethical approval.

Professor Simon Carding from the Quadram Institute and the University of East Anglia is leading the study, which also involves colleagues from UEA, the Norfolk and Norwich University Hospital and East Coast Community Healthcare. Members of the team will be talking about their roles in the new trial.

Professor Carding will summarise the ongoing ME research and introduce the FMT trial, Dr Ngozi Elumogo, Consultant Clinical Microbiologist, NNUH will speak on safety of FMT and UEA’s Dr Andrew Atkin will explain how monitoring activity objectively will be one of the outcomes that will be assessed.

• The event is being organised with Invest in ME Research and takes place on Friday February 7, 12:30 – 15:00 in the Quadram Institute.
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https://www.businessweekly.co.uk/ne...dram-institute-launches-new-clinical-trial-me

Andy · Feb 10, 2020

Twitter thread from this event
https://twitter.com/user/status/1225771719044059136

MEMarge · Feb 11, 2020

InvestinME Research Retweeted

Quadram Institute
@TheQuadram

Simon Carding from
@CardingLab
kicks off our event with
@Invest_in_ME
on our ME research
@NorwichResearch
Park & the #RestoreME study #Restore-ME

@Invest_in_ME have a few tweets, mainly introducing the different people who will be involved eg in recruitment, assessing the outcomes and ways that FMT is currently used such aas in antibiotic resistant C Difficile

Sounds as if there will be a video of the talk uploaded and a contact point for people expressing an interest in the trial.

I

Andy · Feb 18, 2020

Event introduces the RESTORE-ME trial

At a public meeting held at the Quadram Institute in February, a team of researchers from the Norwich Research Park outlined their plans for a new behind a new project investigating ME.

The study, called RESTORE-ME, is being funded thanks top the generous support of the charity Invest in ME Research. It will test whether the use of Faecal Microbiota Transplantation (FMT) to treat ME.

As well as talking about the trial, the team collected the opinions of the attendees,
Click to expand...

https://quadram.ac.uk/restore-me-trial-event/

Videos of the speakers, and slides from event can be seen at the link above.

Sly Saint · Mar 6, 2020

Physical activitiy measurement in the RESTORE-ME study - Dr Andy Atkin

https://www.youtube.com/watch?v=H4pN8A2UtsE

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ME Public Engagement Event - Norwich, Feb 2020

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ME Public Engagement Event - Norwich, Feb 2020

Andy Committee Member

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Andy Committee Member

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