https://www.meaction.net/2018/10/11/meaction-sends-recommendations-to-cdc-for-me-website/ Direct link to PDF with recommendations - http://www.meaction.net/wp-content/...ended-Changes-to-the-CDC-Webpages-on-ME-2.pdf
At page 3 of the recommendations, it reads that BP should be taken at 10 minutes intervals, during a poor man tilt table test, was it a typo? Should it read 1 minute interval instead?
Very good. Just one little observation. It can also lead to patients' families misunderstanding why their relative is not recovering, and potentially laying the blame at their door for not doing so. I suppose this is loosely embraced within 'social support'. Probably outside the scope of this though.