Medically Documenting Disability in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases May 2019 Comerford & Podell

Sly Saint

Sly Saint

Senior Member (Voting Rights)
Patients with severe myalgic encephalomyelitis/Chronic fatigue syndrome (ME/CFS) experience debilitating physical and cognitive symptoms, which often result in the need to file disability claims. A significant number of ME/CFS patients are children or adolescents. ME/CFS patients often turn to physicians who are not trained to recognize and diagnose ME/CFS, and who might or might not understand that ME/CFS is a multi-system primarily physical illness. Such misperceptions can adversely affect the doctor-patient relationship, the clinical outcomes, as well as the results of disability claims
Click to expand...

https://www.frontiersin.org/articles/10.3389/fped.2019.00231/abstract
 
Thanks @Sly Saint
Guys, Sci-hub is a pirate website, right? Has it ever been offline for legal issues? I want to donate but I know nothing about bitcoins. I know, techyidiot.
 
I can't read it all, it's too long for me, but from the first few parts this is a seriously well-researched and -informed portrait of how disabling ME is. It describes the variability and severity of impairment and how there need to be special accommodations to genuinely help us.

This is Barbara Comerford's and Ríchard Neal Podell's first publication (not sure if this is overall or on frontiers). Good clear-headed start.
 
Excellent, written by disability lawyers. For USA socials security disability and private disability insurance claims.

Section on the adult and the need to have a daily written journal of ME effect on activity by the ME patient--this is crucial. Well done!
 
You must log in or register to reply here.
Back
Top Bottom