News from Austria and Switzerland

When I read media reports in Switzerland, I always notice the huge discrepancy compared to Germany. While in Germany, M.E. is almost always mentioned when discussing “Long Covid,” in Switzerland it’s only ever touched on very briefly. Instead, every report emphasizes multiple times that most people recover from “Long Covid”—so as not to give people the impression that it’s something common or serious.
I completely understand where you’re coming from—when discussions around recovery rates or prognoses pop up, it can very easily sound like the implication is "if you haven't recovered, you did something wrong," which can feel invalidating and painful when you are seriously ill for a long time and have plateaued.

I don't feel that these recent articles—especially the one I linked—are trying to suggest that recovery is the expected or normal path for LC or ME/CFS. Rather, it seems like a long-overdue correction toward acknowledging that there is a wide spectrum of outcomes.

What ME/CFS specialists and patients have long pointed to are general statistical trends: factors like earlier diagnosis, immediate exertion management, or younger age can improve the odds of stabilization or improvement. But these are just population statistics—they aren't guarantees, and they certainly don't mean that anyone living with severe illness failed to pace properly or missed a window.

(On a side note regarding why coverage looks the way it does in Switzerland: LC gets far more media presence than ME/CFS primarily because Chantal Britt, Switzerland's main LC advocate, has a background as a journalist.)
 
When I first read the article, I shared that disappointment—it’s frustrating to see how little progress is being made here, especially when the recent wave of BPS reframed as "neuroplasticity" seems to get so much uncritical media coverage.

That said, my main positive takeaway was learning about Dr. Christian von Plessen in Lausanne. Having Switzerland's first university hospital ME/CFS specialist who isn't a psychiatrist feels like a genuinely meaningful step in the right direction.
 
I completely understand where you’re coming from—when discussions around recovery rates or prognoses pop up, it can very easily sound like the implication is "if you haven't recovered, you did something wrong," which can feel invalidating and painful when you are seriously ill for a long time and have plateaued.

I don't feel that these recent articles—especially the one I linked—are trying to suggest that recovery is the expected or normal path for LC or ME/CFS. Rather, it seems like a long-overdue correction toward acknowledging that there is a wide spectrum of outcomes.

What ME/CFS specialists and patients have long pointed to are general statistical trends: factors like earlier diagnosis, immediate exertion management, or younger age can improve the odds of stabilization or improvement. But these are just population statistics—they aren't guarantees, and they certainly don't mean that anyone living with severe illness failed to pace properly or missed a window.

(On a side note regarding why coverage looks the way it does in Switzerland: LC gets far more media presence than ME/CFS primarily because Chantal Britt, Switzerland's main LC advocate, has a background as a journalist.)
I think you possibly misunderstood what I meant here. This article certainly doesn't feel like blaming anyone for not recovering. I wanted to emphasize that many articles in Switzerland about Long Covid read like they are written more to reassure the public that the situation isn't that bad and less to lay the focus on those still affected, the inadequacy of their care, the lack of research and that something must be done to improve this situation.

And regarding Chantal Britt, she really frequently talks about M.E. in her public statements and interviews, she also stated having mild M.E. herself. So while you maybe could argue with that when explaining why there are more articles about Long Covid than ME, I think the fact that ME is hardly or just very briefly mentioned inside these Long Covid articles in Switzerland has little to do with her personally.
 
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When I first read the article, I shared that disappointment—it’s frustrating to see how little progress is being made here, especially when the recent wave of BPS reframed as "neuroplasticity" seems to get so much uncritical media coverage.

That said, my main positive takeaway was learning about Dr. Christian von Plessen in Lausanne. Having Switzerland's first university hospital ME/CFS specialist who isn't a psychiatrist feels like a genuinely meaningful step in the right direction.
It would be nice if he would be the first ME specialist at a University hospital in Switzerland who's not a psychiatrist, but I am not so sure if he is. He is a pulmonologist and the director for Long Covid consultations at CHUV, but I couldn't find him mentioning ME anywhere when I looked him up. So I am really unsure if he really is a specialist for ME or just a specialist for Long/Post Covid who doesn't specifically mention ME, like Dr. Hund-Georgiadis at Rehab Basel or Dr Weber at Waidspital Zurich.
 
When I read media reports in Switzerland, I always notice the huge discrepancy compared to Germany. While in Germany, M.E. is almost always mentioned when discussing “Long Covid,” in Switzerland it’s only ever touched on very briefly. Instead, every report emphasizes multiple times that most people recover from “Long Covid”—so as not to give people the impression that it’s something common or serious.
And yet, Swiss media is unfathomably better than it was 4-5 years ago on this subject. Germany/Austria are just honestly probably the best in the world right now.
 
It would be nice if he would be the first ME specialist at a University hospital in Switzerland who's not a psychiatrist, but I am not so sure if he is. He is a pulmonologist and the director for Long Covid consultations at CHUV, but I couldn't find him mentioning ME anywhere when I looked him up. So I am really unsure if he really is a specialist for ME or just a specialist for Long/Post Covid who doesn't specifically mention ME, like Dr. Hund-Georgiadis at Rehab Basel or Dr Weber at Waidspital Zurich.
Pulmonologist doesn’t sound particularly encouraging as I’d imagine it takes a “shortness of breath”/“lung damage” focus on Post-COVID.

FWIW my experience at the long COVID clinic in CHUV in 2023 was not good, cough “Long COVID Specialist” who believed all ME/CFS = FND cough.
 
I think you possibly misunderstood what I meant here. This article certainly doesn't feel like blaming anyone for not recovering. I wanted to emphasize that many articles in Switzerland about Long Covid read like they are written more to reassure the public that the situation isn't that bad and less to lay the focus on those still affected, the inadequacy of their care, the lack of research and that something must be done to improve this situation.

And regarding Chantal Britt, she really frequently talks about M.E. in her public statements and interviews, she also stated having mild M.E. herself. So while you maybe could argue with that when explaining why there are more articles about Long Covid than ME, I think the fact that ME is hardly or just very briefly mentioned inside these Long Covid articles in Switzerland has little to do with her personally.
I can understand that, with its focus on high recovery rates for Long Covid, the article might seem at first glance to downplay Long Covid and ME/CFS and reassure the general public that it is not an urgent health problem.

However, if you take into account that voices claiming these illnesses are psychosomatic and can be overcome with brain training have recently grown louder in Swiss media, there is good reason to read this piece quite differently: as a targeted, strategic pushback against BPS models and an argument for a somatic understanding of LC and ME/CFS.

In my opinion, the most important message for the Swiss public is the paragraph in the middle of the article. There, the new head of the Long Covid clinic at Unisanté in Lausanne—de facto the top Swiss Long Covid specialist as the only physician at a university hospital setting—is quoted with a short, clear statement: Long Covid is unambiguously a somatic disease. Psychosomatic explanatory models are to be firmly rejected, as biomedical scientific evidence is now available.

This is contrasted with the note that the website of the BAG (health ministry) has not been updated in two years—meaning the topic has politically gone to sleep in Switzerland, even though so many patients remain ill and lack adequate support.

I consider this to be a very cleverly written article that meets the general public where it currently stands, only to then deliver one single, clear message in a targeted way: patients suffering from a serious physical illness are underserved, and politically, hardly anything is being done. To me, this seems like a very sober, objective description of the current situation in Switzerland.

An interesting detail on the side: The article was published on Sunday shortly before the end of the Tour de France Femmes, so the two topics—at least through editorial logic and personalization—were placed right next to each other. Marlen Reusser is currently the most prominent person affected by LC in Switzerland, after recently explaining in a lengthy SRF interview how she allegedly overcame her illness using self-hypnosis and working on unconscious dysregulations. The fact that this clarifying article appears right now feels like a deliberate editorial decision by SRF: giving the many thousands of people who visited the website for Reusser finishing the Tour an immediate scientific correction to the BPS narrative.

(Translated from German with Gemini)
 
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I can understand that, with its focus on high recovery rates for Long Covid, the article might seem at first glance to downplay Long Covid and ME/CFS and reassure the general public that it is not an urgent health problem.

However, if you take into account that voices claiming these illnesses are psychosomatic and can be overcome with brain training have recently grown louder in Swiss media, there is good reason to read this piece quite differently: as a targeted, strategic pushback against BPS models and an argument for a somatic understanding of LC and ME/CFS.

In my opinion, the most important message for the Swiss public is the paragraph in the middle of the article. There, the new head of the Long Covid clinic at Unisanté in Lausanne—de facto the top Swiss Long Covid specialist as the only physician at a university hospital setting—is quoted with a short, clear statement: Long Covid is unambiguously a somatic disease. Psychosomatic explanatory models are to be firmly rejected, as biomedical scientific evidence is now available.

This is contrasted with the note that the website of the BAG (health ministry) has not been updated in two years—meaning the topic has politically gone to sleep in Switzerland, even though so many patients remain ill and lack adequate support.

I consider this to be a very cleverly written article that meets the general public where it currently stands, only to then deliver one single, clear message in a targeted way: patients suffering from a serious physical illness are underserved, and politically, hardly anything is being done. To me, this seems like a very sober, objective description of the current situation in Switzerland.

An interesting detail on the side: The article was published on Sunday shortly before the end of the Tour de France Femmes, so the two topics—at least through editorial logic and personalization—were placed right next to each other. Marlen Reusser is currently the most prominent person affected by LC in Switzerland, after recently explaining in a lengthy SRF interview how she allegedly overcame her illness using self-hypnosis and working on unconscious dysregulations. The fact that this clarifying article appears right now feels like a deliberate editorial decision by SRF: giving the many thousands of people who visited the website for Reusser finishing the Tour an immediate scientific correction to the BPS narrative.

(Translated from German with Gemini)
They now included something about ME, it's a NANO documentation that's called "ME/CFS endlessly tired" and begins of course with a recovery story and, between scientists like Dr. Scheibenbogen speculating about the causes of ME, when talking about treatment has multiple "experts" talking about how important it is not to become too passive with ME/CFS and to gradually increase activity

https://www.srf.ch/news/dialog/long-covid-das-zaehe-leiden-geht-fuer-viele-patienten-weiter


Also maybe interesting to mention and for comparison, this article seems to be a shortened version of the one that was published on RTS, national television for the french speaking part of Switzerland. The article there isn't just much longer but also written with much more urgency and emphasis on Long Covid being serious and surely not psychosomatik, e.g. they begin with the story of Samuel from Austria who died with assisted suicide.

Here the article from RTS:

https://www.rts.ch/info/sante/2026/...nnent-les-malades-du-covid-long-29290579.html
 
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Rob Wüst might have answers for her I guess.

With Reusser I never know what to feel: Anger for being a PBS model super spreader. Envy and sympathetic joy that she's recovered. Fear that she's going to relapse and end up on disablilty.
Thank for posting, I share your complex sentiments regarding her.

Machine translation:

Unexplained Setback​

The day after the final, she spoke to the media: “The disappointment is, of course, extremely great.”
Alongside the frustration of missing out on a podium place that had seemed secure before the final day, Reusser was above all left perplexed.
The Swiss rider does not know why she dropped back so early on Sunday: “It’s a mystery to me why my legs can do it on other days and then suddenly can’t.”

She can completely rule out the “classic explanations” – such as poor nutrition or inadequate cooling.
As a possible reason, Reusser cited lingering effects from her crash at the Tour of Flanders in April: “The harder we ride, the more strength I lose in my left leg.”
In other words, her pedalling becomes less smooth as the effort increases; “there’s a problem somewhere.”
 
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Rheumatism League Raises Awareness of ME/CFS
Making a Statement for an Invisible Illness
Sunday, August 9, 2026
The South Tyrol Rheumatism League also wants to make visible those people who have little opportunity to stand up for themselves and their concerns. For this reason, a further sign of solidarity was set on Saturday, with buildings and landmarks across South Tyrol illuminated in blue—the color associated with “ME/CFS.”

These included the miniature “Three Peaks” at the roundabout in Dobbiaco, the “Kurhaus” in Merano, and Bruneck Castle. “For everyone whose world has become smaller and smaller because of ME/CFS. For everyone who must not be forgotten,” emphasizes the South Tyrol Rheumatism League. It is campaigning for greater recognition, better care, and tangible improvements for people with ME/CFS.
 
Tweet by the WE&ME Foundation:

Machine Translation:
We are very pleased to invite you to the second ME/CFS roundtable for physicians and selected researchers.

The event was initiated by Christoph Ströck and Dr. Michael Stingl and serves as a forum for professional exchange, personal networking, and the development and strengthening of the medical ME/CFS community in Austria.
The evening will focus on getting to know one another, informal discussions, and interdisciplinary dialogue on current developments and challenges in ME/CFS.

Date & Time:
Thursday, September 17, 2026, at 8:00 p.m.

Ströck-Feierabend Restaurant, Burggasse 52–54, 1070 Vienna

Attendance is exclusively in person; online participation is not available.

To provide as comfortable an environment as possible, air purification measures will be implemented and FFP2 masks will be provided.

Refreshments will be provided free of charge by Ströck.
 
Petition in Switzerland, already 502 of 600 signatures collected:
In the canton of Nidwalden, the IV office is forcing people with severe ME to attend external appointments.

Those who do not attend are deemed to be uncooperative and, according to the cantonal court as well, forfeit their right to a formal procedure.

A complaint against this is now underway.

Please support it by signing this petition! It can also be signed from outside Switzerland:

Machine Translation:
The cantonal IV offices are required under federal legislation to conduct their assessments in a manner that is reasonable and proportionate for the persons concerned. It must therefore not be the case that someone has to risk a lifelong deterioration in their health in order to undergo an IV medical assessment.

The legislation provides the IV offices with various alternative ways of carrying out assessments, for example by making a decision on the basis of the usually already comprehensive medical history, targeted questions to the treating physicians, and information provided by other specialists, or by conducting assessments in the homes of the persons concerned.

This issue is currently being addressed throughout Switzerland: In autumn 2025, the Federal Council, the National Council and the Council of States also acknowledged that the situation regarding healthcare and social security for people with ME/CFS is inadequate and needs to be improved. An important point explicitly mentioned in this context is the need for adequate support and recognition by the social insurance system and its medical assessors. SRF also reported on the issue in May as part of a 10 vor 10 segment. The motion and the SRF report are linked below.

It is therefore important that the IV office of Nidwalden adapts its practice for people with ME/CFS and takes seriously both their sometimes limited ability to travel and the risk of a temporary or permanent worsening of the disease following overexertion. ME/CFS is a specific disease, not nonspecific fatigue.
 
Stumbled upon this post from 2 years ago.
It’s fascinating to see how the neurologists in both Germany and Austria are fixated on the notion that ME/CFS is a psychosomatic malingerer‘s dream:
 
Another article in the Swiss francophone broadcaster about pwPost-COVID getting rejected from state disability payments.


Translated title:
“I can only work three hours a day”: these victims of long COVID shunned by the AI (AI = assurance invalidité aka. disability insurance, not artificial intelligence)
 
Another article in the Swiss francophone broadcaster about pwPost-COVID getting rejected from state disability payments.


Translated title:
“I can only work three hours a day”: these victims of long COVID shunned by the AI (AI = assurance invalidité aka. disability insurance, not artificial intelligence)
Machine Translation:

“About four out of five patients with Long COVID will recover within two years. Among the others, there is slower recovery, which can take several years. There is also a small proportion of patients whose condition does not improve, or even worsens after two years,” explains Christian von Plasson, head of the Long COVID clinic at Unisanté.​

Support from relatives​

Six years after contracting COVID, Dorothée has still not recovered. To live without support from disability insurance, she has to fend for herself. “We are going to set up an association through which my relatives, family members and acquaintances will be able to give me money every month. Everyone will be completely free to give me whatever they want.”​
“That will allow me to supplement my salary and get by. One of my relatives summed up the situation very well by saying that, since the social welfare system isn’t working, we’re doing what people do in countries where there is no social welfare system: my relatives and family are supporting me,” Dorothée concludes.​

 
“About four out of five patients with Long COVID will recover within two years. Among the others, there is slower recovery, which can take several years. There is also a small proportion of patients whose condition does not improve, or even worsens after two years,” explains Christian von Plasson, head of the Long COVID clinic at Unisanté
Interesting to see that comment about recovery rates from the head of the Long Covid clinic, thanks Chandelier.

It's great that that situation with the lack of access to social welfare for people with Long Covid is in the media. Is it getting much attention @Yann04?
 
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