Long COVID and return to work: a qualitative study 2022 Kohn et al This study, unfortunately paywalled, is from the Belgian Healthcare Knowledge Centre.
New study out - more qualitative work from Kohn et al. What it says on the tin: Difficulties encountered by long COVID patients in the Belgian health system 2022 Kohn et al
From: Dr. Marc-Alexander Fluks Subject: Webinar: Training for physicians on YPWCs, March 9, 2023 [in Dutch] For those of you understanding Dutch: There is an online training by Leuven University, Belgium, for physicians on YPWCs. Title: The tired Adolescent Station: Pentalfa Leuven University Date: March 9 2023 Time: 19:00 UTC URL: https://gbiomed.kuleuven.be/pentalfa/sessies/de-vermoeide-adolescent/ Google translation: https://gbiomed-kuleuven-be.transla..._sl=nl&_x_tr_tl=en&_x_tr_hl=nl&_x_tr_pto=wapp Rerun: https://gbiomed.kuleuven.be/pentalfa/herbekijken/ Email: pentalfa@kuleuven.be Registration: https://gbiomed.kuleuven.be/pentalfa/sub/?webinarRegister=true&sessie=304497
From: Dr. Marc-Alexander Fluks May 11, the University Leuven 'Continuing Education Programme' Pentalfa in Belgium will organize a free online symposium (in Dutch) on Post-Covid, including ME/CFS, for MDs. Date: May 11, 2023 Time: 18:00 UTC URL: http://www.pentalfa.be WebTV: https://gbiomed.kuleuven.be/pentalfa/algemene-informatie/zoom-webinar/ Google translation from Dutch to English, https://gbiomed-kuleuven-be.transla..._sl=nl&_x_tr_tl=en&_x_tr_hl=en&_x_tr_pto=wapp Info is available at, https://gbiomed.kuleuven.be/pentalfa/sessies/langdurige-klachten-na-covid-19/ Google-translation from Dutch to English, https://gbiomed-kuleuven-be.transla..._sl=nl&_x_tr_tl=en&_x_tr_hl=en&_x_tr_pto=wapp Register at, https://gbiomed.kuleuven.be/pentalfa/sub/?webinarRegister=true&sessie=304608 The symposium will be archived online at, https://gbiomed.kuleuven.be/pentalfa/herbekijken/
Multi-disciplinary approach. Two psychiatrists invited that make a comparison with CFS. Talking about tailor-making recovery pathways(with what?). This doesn't look good.
Dr. Marc-Alexander Fluks has highlighted newspaper reports about complaints regarding Elke Van Hoof (Belgian CFS researcher). The reports date to May 2023 but the computer only found the reports only this morning. https://www.hln.be/binnenland/burn-...hoof-klagen-toxisch-leiderschap-aan~a0ceddd5/ https://www.bruzz.be/samenleving/in...ke-van-hoof-vub-voor-toxisch-leiderschap-2023 https://www.vrt.be/vrtnws/nl/2023/0...n-out-behandeling-die-dan-toch-niet-zo-spect/ https://www.standaard.be/cnt/dmf20230512_97227259 https://www.vrt.be/vrtnws/nl/2023/0...sor-elke-van-hoof-reageert-op-aantijgingen-o/ https://www.demorgen.be/snelnieuws/...kers-klagen-toxisch-leiderschap-aan~b0ceddd5/ https://www.gva.be/cnt/dmf20230504_97019891 https://www.demorgen.be/nieuws/ook-...ndanks-gebrek-aan-academisch-bewijs~b32d0925/
Dr. Elke Van Hoof is a psychologist who previously worked with Kenny De Meirleir and published several papers on CFS. She then moved to other things such as burnout and hypersensitivity. In the articles, her team accused her of toxic leadership. She also made some questionable claims about Eye movement desensitization and reprocessing (EMDR) as a treatment for burn-out.
https://www.vrt.be/vrtnws/nl/2024/0...replein-voor-vergeten-slachtoffers-chronisch/ Automatic translation: Action in Brussels for patients with chronic fatigue syndrome: "Doctors often think it is all in the mind" To mark World ME/CFS Day, an awareness campaign for the forgotten disease 'myalgic encephalomyelitis' or chronic fatigue syndrome (ME/CFS) took place on Place Brouckère in Brussels. The organizers demand better care and more scientific research. BRUZZ Sat May 11 16:59 Chronic fatigue syndrome is a chronic disease that causes extreme exhaustion, pain and cognitive impairment. The disease usually occurs after an infection and is described by patients as a perpetual flu. In Belgium, an estimated 20,000 to 45,000 patients suffer from ME/CFS, but the cause of the disease is unknown and there is no effective treatment yet. With a campaign in which dozens of empty shoes were displayed, symbolizing the millions of patients who have disappeared from public life worldwide due to the disease, the non-profit organization 12ME is now drawing attention to their situation. "There is a need for better training of healthcare providers and doctors in Belgium," says chairman Kristien De Vos. "Because there is not yet a clear medical test for ME/CFS, doctors still too often think that the condition is all in their head. As a result, the disease is treated incorrectly and patients encounter stigma and misunderstanding." 12ME therefore advocates better care and more scientific research into the disease. Germany and the Netherlands have now drawn up a research program following a European resolution from 2020, but Belgium is still lagging behind.
