News from The Netherlands

For people reading this thread, what formatting do you prefer on the Parliamentary questions? The first one;
- a one page screen shot in silver gray (see the Bikker questions)
- several pages, but bigger font (see the Bushoff questions)
In an ideal world: copied as plain text so that it shows up in the format I use for S4ME. I can’t really read with a white background, so the format of the images doesn’t matter much.

If that isn’t possible, the second one works better on mobile.
 
Two Dutch support groups have appointed Sophie Querido as new director.

They are:
- C-support (for covid aftercare)
- Q-support (for Q-fever expertise)



English

 

Onrust onder patiënten met Q-koorts en long covid: nazorg hapert en dreigt te verdwijnen​



English Translation

Unrest among patients with Q-fever and Long Covid; after care is stalling and is at risk to disappear.
 
From @guustweet at X

Patiëntenorganisaties zijn ontevreden over C-support en Q-support. Ze hebben het vertrouwen in het bestuur opgezegd. #LongCovid #Qkoorts #QVS

English translation
Patient organizations are dissatisfied with C-support and Q-support. They have lost confidence in the board. #LongCovid #Qkoorts #QVS

Quote from the FD article



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The dutch public broadcaster NOS, runs another article on MEcfs.

The item details an open letter that was signed by 100 healthcare workers and sent to the NVK (Dutch association of pediatrics) and the VGCt (Association for Behavioral and Cognitive therapy) where they call for change to the current MEcfs treatment guidelines for children and adolescents.

Zorgcollega's roepen kinderartsen tot de orde over uitputtingsziekte ME/CVS​

Dutch version


Healthcare colleagues call pediatricians to order over exhaustion disease ME/CFS​

English version
 
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"The realization that I may have wronged young people with ME/CFS, often seriously ill, is painful," says former GZ psychologist Wieke Pasman, one of the signatories. Pasman contracted the similar long covid during the pandemic and, as a patient, did notice that cognitive behavioral therapy as a treatment has risks for people suffering from diseases such as long covid and ME/CFS.

'Self-reproach'​

“At the beginning of my own illness, I struggled with self-reproach, partly because I had missed biomedical knowledge about ME/CFS, despite always keeping a close eye on the scientific literature.”
I’m glad they’ve changed their mind, but I find the last part a bit lacking of self-awareness. Anyone that had seen any of the BPS literature on ME/CFS should be able to recognise the flaws. The issue isn’t that they missed the biomedical research (there isn’t much regardless), but that they didn’t see through the terrible BPS research.
 
Here is a link to the open letter that 100 healthcare workers signed and sent to the NVK (Dutch association of pediatrics) and the VGCt (Association for Behavioral and Cognitive therapy) where they call for change to the current MEcfs treatment guidelines for children and adolescents.

In Dutch

In English
 
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