New Hampshire Bulletin: 'The pandemic may have ended, but for these NH long COVID patients, the virus’ impact continues' 'One of New Hampshire’s lawmakers is among those experiencing long COVID, Wendy Thomas...' 'That’s why Thomas proposed House Bill 58. The bill would create a commission tasked with studying possible protections and accommodations for people with long COVID.' “I’ve become an advocate for people who have post-viral symptoms,” she said. "For Ballard, the condition came with brain fog, forgetfulness, shortness of breath, fatigue, and increased heart rate. “It was the brain fog and the forgetfulness that was really the scariest thing...ultimately, she didn’t return and resigned from police work."
Salk Institute: 'Connecting the dots—From the immune system to the brain and back again' 'Adinig is not alone; an estimated 17 million adults have some form of long COVID..clinicians still don’t know who is most likely to develop lasting cognitive symptoms or why' “When our immune system responds to an infection, our brain and cognition are clearly impacted in ways that we don’t fully understand.” 'Armed with a new $20 million, five-year gift from the NOMIS Foundation, Kaech and her faculty colleague Associate Professor Nicola Allen are co-leading a new Neuroimmunology Initiative at Salk to focus on this topic.' 'Once Salk researchers identify the brain changes that follow an infection, their next task will be to figure out exactly how they come about.' 'Could immunotherapies one day treat or prevent these brain diseases? Could similar drugs stop the lasting brain fog and cognitive dysfunction of long COVID or chronic fatigue syndrome? Could our brains hold the key to treating allergies and autoimmune diseases?' 'By bringing neuroscientists and immunologists together, the Salk Neuroimmunology Initiative hopes to answer questions like these.'
Nature: 'Four lessons COVID taught us about the immune system' 4. 'Hints at the cause of post-viral illness' 'How best to treat long COVID is just one of many unanswered mysteries in the wake of the COVID-19 pandemic'
From: Dr. Marc-Alexander Fluks Source: U.S. Federal Register Vol. 90, #20, p 6912 Date: January 21, 2025 URL: https://www.federalregister.gov/doc...268/rehabilitation-long-term-training-program https://www.govinfo.gov/content/pkg/FR-2025-01-21/pdf/2025-00268.pdf [A Proposed Rule by the Education Department] Rehabilitation Long-Term Training Program ----------------------------------------- AGENCY: Office of Special Education and Rehabilitative Services (OSERS), Department of Education. ACTION: Proposed priorities and requirements. SUMMARY: The Department of Education (Department) proposes priorities and requirements under the Rehabilitation Long-Term Training (RLTT) program with a focus on the Comprehensive System of Personnel Development (CSPD) and six rehabilitation topic areas. The Department may use these priorities and requirements for competitions in fiscal year (FY) 2025 and later years. This action is intended to address the national needs for the RLTT program, particularly the retention of qualified vocational rehabilitation (VR) personnel in the field of State VR services and the training of RSA scholars who aspire to become VR professionals and will fill critical VR positions where there are shortages. (...) Proposed Priority: Under the Proposed Priority 2, applicants must propose a project that provides academic training to RSA scholars where the training leads to a degree (undergraduate or master's level) or academic certificate in one of six rehabilitation topic areas that follow: (...) 3. Rehabilitation of Individuals With Mental Health Disorders or Illnesses (ALN 84.129H). Projects in this topic area must be designed to support RSA scholars interested in pursuing a degree or certificate for careers that provide specialized services to individuals who have mental health disorders or illnesses and are participants in the State VR programs. Additionally, projects must be designed to prepare RSA scholars to address a range of issues in VR services for individuals with mental health disorders or illnesses to assist them to achieve and maintain competitive integrated employment. Such mental health disorders and illnesses might include mood disorders (e.g., depressive disorders and bipolar disorders), suicidality, schizophrenia, eating disorders, post-traumatic stress disorder, and other mild to severe mental health disorders. This can include mental health issues related to long-term effects of post-acute infection syndromes (COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) for which mental health care may be part of treating a potentially more systematic illness. (...) Glenna Wright-Gallo, Assistant Secretary for Special Education and Rehabilitative Services. [FR Doc. 2025-00268 Filed 1-17-25; 8:45 am] BILLING CODE 4000-01-P -------- (c) 2025 U.S. Federal Register
New York Times: “I Love You. Please Find Someone Else.” “In sickness and in health” may sound romantic — until you’re sidelined with a chronic illness” “..I didn’t know that the virus had left me with post-exertional malaise, a hallmark of long Covid..” “The Groundhog Day of it all — managing the same symptoms day after tedious day — breaks you mentally. Then it breaks your heart.”
Reposting because I put the wrong Zoom link the first time. --- Research Roundtable with P. Rowe, MD, & A. Azola, MD, of Johns Hopkins ME/CFS Clinic, hosted by Renegade Research Feb 1, 2025 01:00 PM in Eastern Time (US and Canada) This talk will be in two and a half hours. Link to register
The Hill by Janet Golden, Ph.D, Rutgers University: 'When infection disease becomes chronic: Lessons from COVID and beyond' 'Long COVID...is now a critical area of study for chronic disease researchers..the estimates of the incidence of long COVID among those infected in the U.S. is 14 percent' 'Treatments for infectious diseases often prevent the lifelong misery of chronic infections. Funding streams for both chronic and acute medical conditions are, and have always been, a critically conjoined public health need.' 'What long COVID will mean going forward for those of us who have been infected and continue to face infections is uncertain. What we can be sure of is that it is dangerous to view acute infectious disease and chronic disease funding as a competition.' 'At the same time, efforts to find treatments and cures for chronic diseases is vital. Research in both areas is integral to the public health enterprise.'
ABC News: 'Long COVID impacting more than 1 million children: CDC study suggests' ‘More than 1 million children may have been affected by long COVID in 2023, new federal data published Monday suggests.' 'Another theory is that virus particles may be persistently active, causing people to suffer long-term symptoms.' (I think [?] this is the associated JAMA reference)
Just FYI that link has an analytics tracker that connects referrals (sites have been known to sell this data to create social networks used for targeted advertising) https://abcnews.go.com/Health/long-covid-impacting-1-million-children-cdc-study/story?id=118393880 If you remove the “id” number at the end of the link it should work fine. Here’s a “clean” link: https://abcnews.go.com/Health/long-covid-impacting-1-million-children-cdc-study/story A lot of sites do this automatically when you share so don’t worry about it, but I’m just giving members the option to use a non-tracking link.
